#15550 06-01-2004 03:29 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Hi All,
Well, I had my 4 month CT scans (Head, Chest, Neck) on Sat and will be going to U of C today to hear the results.
I have been having a tingle in my neck and quite a bit of swelling in the center of my throat. My oncol tells me the is Lymphedema. Man I hope he's right.
I will be back with the results later today.
Hope everybody is doing well. Talk to you soon.
Robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#15551 06-01-2004 03:45 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Good Luck Robert, I have my fingers crossed for you!
I have lots of tingling in my neck and until the past two months or so had lots of swelling in my neck.
Post your results as soon as you can!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#15552 06-01-2004 04:45 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hoping and praying for good results, Robert!!!God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#15553 06-01-2004 04:51 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | positive vibes being sent your way Robert...
prayers.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#15554 06-01-2004 05:31 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Hey Robert. I'll be anticipating good news!
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#15555 06-01-2004 06:21 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Robert,
I'm hoping for totally good results for you!
(Coincidentally, today's Wall Street Journal has an article on lymphedema as an after-effect of radiation. I just finished reading it when I saw your post.)
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#15556 06-01-2004 11:36 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Robert,
Hope all goes well and news is good! Praying for clean results!!
Deb
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#15557 06-02-2004 03:56 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Hi Everyone,
First let me thank you for your kind words. You are the best.
I met with RAD/ONC/SUG yesterday.
I actually got to see all of my CT scans on the computer not just a report. Pretty cool. No very cool.
All reports were very positive. Complete response is what they are telling me! I am so frigging happy I could burst.
My wife and I had a son last WED and making it to his birth was a large milestone. My next milestone is to live long enough for him to remember me. After that it's high school graduation.
I am thankful to god for the opportunity to write this.
Thanks again everyone.
Robert Hamilton
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#15558 06-02-2004 04:20 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Robr: Congratulations, Robert. Excellent news. Am so pleased that all of the prayers were heard and worked. Guess He has more for you to do here for Him, your family and yourself. Thanks for the good news.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#15559 06-02-2004 04:20 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Robr: Congratulations, Robert. Excellent news. Am so pleased that all of the prayers were heard and worked. Guess He has more for you to do here for Him, your family and yourself. Thanks for the good news.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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