| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Ditto to what lynney said! Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2011 Posts: 188 | Beth, his age indeed indicates something else amiss other than cancer, and I know it is hard not to worry.
Not meant to burden or scare you, but my Dad's ENT missed his base of tongue tumor repeatedly. It's a similar cancer to Michael Douglas's who had the same experience.
Beth--and others: Not all ENTs are created alike OR have the same experience/high tech equipment to spot things. (This goes for dentists as well, it is GREAT to have the OC exam but they are not all OC trained or experts.) *IF* you do not get to a concrete answer and plan immediately, consider a Comprehensive Cancer Center (CCC) evaluation which has made the difference in several of my OCF boardie's lives.
Trust all will be fine!
Last edited by Caco; 09-22-2012 10:52 AM.
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | Hi Beth, my close relative had similar symptoms and a swollen lymph node on right side of neck. ENT did lots of inconclusive tests including USG Needle biopsy twice and finally excision biospy, which also came negative. It eventually turned out to be a rare disease for this part of the world. Its been 4 years since then and she's has been all well.
I would suggest changing the doctor. I hope your son is doing Salt water gargle atleast 4 times a day!
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Feb 2013 Posts: 2 Member | | Member
Joined: Feb 2013 Posts: 2 | I am new here and followed this lady's post thru google because my son just turned 17 and was just told he may have oral cancer, so I'm doing some reading and researching, I wonder how she and her son are getting along.
Dentist found probable squamous cell carcinoma behind my son's impacted wisdom tooth. He goes back this week for a recheck and referral to a specialist.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi I don't think she's reported back in. We did have another member who was 18 at DX. His cancer was very aggressive and a week into radiation they found it had jumped to nodes on the other side. The rewrote his plan to include both sides and he's doing great three years out. Just got married a few weeks ago. 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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