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Charm, Ive been watching for an update about your recovery. I knew there had to be one sooner or later. Also knew you must be feeling better as I see you posting more frequently. So glad to hear you are recovering so quickly.

Sorry to hear about the darn mucous! That really stinks but its a temporary issue. Can you try using a water pik on the lowest setting to help get the gunk out of your mouth? Its worth a try, maybe it would work. If you have prescription mouthwash like peridex, dilute it 3 or 4 parts water to 1 part of mouthwash so it wont burn your sensitive mouth. Or maybe try diluted biotene or seltzer water like you used before. Hope this phase goes by quickly!!!

Keeping you in my thoughts! Be well buddy!!!



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 8,311
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Better the mucous than perhaps the alternative! From where you started this thread I think this news is FANTASTIC!!!!

So let's stick with THIRD TIMES A CHARM!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Very glad to see your update. You are one tough dude!
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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Great news, Charm! You certainly have been through a tough time. I sure hope that you get some relief soon from that sticky mucus. Here's wishing that the suction machine can clear a lot of it out and you can get a good night's sleep. Sending you hugs!

My best�
Anita


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
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Charm, that is such good news. The mucous sounds ghastly, especially as it's so badly affecting your sleep. I hope you can get on top of it quickly and get some decent rest. Best wishes, Linda


Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good.
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Great news, Charm! Compared to other treatments a suction machine provided longer periods of relief from mucous sticking and taking over my mouth causing me to feel sick constantly. I hope the machine helps give you a much needed break.

Karen

Last edited by Karen Rose; 12-11-2012 07:13 PM.

46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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I'll have my post treatment scan after you in Febuary, but having a PET/CT instead. Good luck with the aspirator, which I have used in the hospital, but not at home.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Thank you all for the supportive replies. I did not expect this third time to be as hard as it has turned out, although I am developing a healthy respect for the party line that going above 77 GY really does mean some serious damage with long lasting effects. Still, I will be home for Christmas instead of in a hospice as we first feared, so it's all good.
Keep the Faith
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jun 2009
Posts: 875
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Charm: It's always good to see your posts that let us know how you are doing. You are a "Shining Example" of how we all should be when tackling the many set-backs you have had. I see you plugging away constantly helping "newbie's" when they post, and others who are asking for advice, and am amazed at the amount of time you spend helping them. And all the time, you are suffering with your own problems, but never complain. See, that's being a "Shining Example." I pray that one day you'll be free from all the crappy problems the treatments caused. I hate mucus also, and have been battling it for some time (5 years since my treatments), so know how nasty that stuff is, sticky or frothy, yuk! Keep updating us and hope you get relief soon.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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Charm,

I�ve been wondering how you were doing and was anxiously waiting for an update. The good news was worth the wait!

I hope the suction machine helps with the mucous. It is great that you will be home for Christmas to enjoy the holiday with your family and friends!

I agree with Julieann that you are a "Shining Example" of how to deal with the crap that is handed you at times � way too many times � and how you were still offering support and advice to newbies while dealing with you own issues.

I wish you the best!


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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