| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hugs - do what you can to feel comfortable.  I was hoping the trial would be offered in conjunction with standard treatment.
Last edited by Cheryld; 08-29-2012 06:52 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 |
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | kellijo
You have not posted in a month now. Did you know that if you type into Google the search term "sucks the big wally" that your OCF post comes up # 2 out of 16 million, 900 thousand hits.
That's second out of 16,900,000 results. Thought it might bring a smile to your face. I have refrained from commenting on your post in the hope that you decide to do more than palliative once the chemo shrinks the tumor. If you met some of the "disfigured" oral cancer survivors I have , then you would know that they have crafted a meaningful worthwhile life. You can too. Even three time "losers" (cynical sarcastic way of third recurrence)like myself can be winners as long as we don't give up.
Keep the Faith
Charm.
Last edited by Charm2017; 09-24-2012 05:08 PM. Reason: added bold emphasis
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Kellijo - There's a LOT of hope in Charm's post above and it gave me hope for you, too! Please, please don't give up. Stay with us.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Kellijo, I am here if you feel you want to talk with someone. Ive been thru a major life changing surgery to take care of my third round of OC. I am not thrilled to be now disfigured but I have a good life with many good friends. I have my ups and downs like anyone else but overall I lead a very happy life. I have had my jaw removed during a 10 hour surgery and had some complications that not everyone has. I understand everyone is different and know you have been thru so much already but you are young which does make a big difference. I didnt have much hope at all going into the third round, in fact I had given up before I even decided to get treated. But I thought long and hard about my situation and the members of this forum along with Brian Hill helped me realize that I could do it. Somehow I got thru it and Im still here over 3 years later. If you would like to talk with me over the phone I can call you or you could give me a call. I really think it would be very helpful to speak with me. This site is a very valuable place for support and info so please come back often and let us help you.
(((HUGS)))
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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