| | Joined: Aug 2012 Posts: 7 Member | | Member
Joined: Aug 2012 Posts: 7 | thanks for the advice! i will do as you say! | | | | | Joined: Aug 2012 Posts: 7 Member | | Member
Joined: Aug 2012 Posts: 7 | thanks and i am getting with my caregiver today and getting her on this site! | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | We will be glad to be here for your caregiver, too!
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | I know that as the caregiver this site was my life saver. I was able to get questions answered at all hours of the day and could be as open as I wanted. I cried, yelled and vented like crazy!! Please have her get in touch with us!
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Apr 2012 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2012 Posts: 60 | Hi! I wish I would have found this forum before all my cancer started, because there is a wealth of information from people who have been through it. I was fortunate that my husband took care of me in the first six months. I had a trech, a port for chemo, and a feeding tube before I even started my first appointment for Chemo. I had a hard time asking for help, but it came time to ask due to we are self employeed. One of us had to keep the business running, but I have wonderful friends who helped me until I could drive my self to appt's. So keep us posted and good luck with your surgery.
10/10 IV OSCC metastatic to lymph nodes. 10/10 Peg,Port,Trech. due to rad scarring cannot swallow. 9/12 Pet clean. SCC back again 11/12. Tumor attached to jugular, Rad DX left side of neck 11/19/12. No Chemo or Rads. MRI on 1/11/13 for chronic pain w/pet scan 2/15/13.
| | | | | Joined: Aug 2012 Posts: 7 Member | | Member
Joined: Aug 2012 Posts: 7 | if you cannot swallow, what do you do? | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hopefully you have a peg in place for nutrition and fluids... And magic mouthwash to support you in trying to swallow - it gets rid of the pain temporarily. That's depend on whether the reason you can't swallow is pain or physical - take care
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
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