| Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | So glad you're pushing trough.. The diet change will likely help your wound healing!  so glad you're getting there - the fall out from rads sucks but hopefully it will do its job and be well worth it in the end!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: May 2012 Posts: 47 "OCF Canuck" Contributing Member (25+ posts) | OP "OCF Canuck" Contributing Member (25+ posts) Joined: May 2012 Posts: 47 | Hi Cheryl,
As it turned out, I was allergic to the chemicals in the cleaning products they use in the bathroom. So after asking housekeeping to use our natural cleaner, the rash and hives are much improved.
My challenge now is the sore throat at night. During the day, I drink lots of fluids and that seems to work to keep the discomfort of the ulcers in the mouth and sore throat at bay. But when I sleep, I am not getting the fluids and my throat just kills, along with an extremely dry mouth. Last night I had to get up every half hour to drink water. Also during the day, I rinse with the mucositis solution which contains a numbing agent to help with the soreness. I've heard that applying some olive oil in the inside of the mouth helps. Did you have this experience?
Fortunately for the outside skin, I apply lots of Galxal base and it seems to work very well in keeping the skin from burning.
I am exactly halfway with the radiation. The chemo oncologist decided to postpone my second chemo and he will monitor my condition to decide if and when I will get it.
Joseph
Joseph 59 male pain in tongue strt 2/10/12, Dx SCC 3/19/12, confirmed Stg IV 4/5/12, Total Glsctmy & recon w/ flap from L thigh, neck disct, trach 4/27/12 G-Tube 5/1/12 55 nodes all clear completed 2 chemo 33 rad non-smoker, non-drinker, exercise daily, mostly vegetarian diet...go figure
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Keep up the good work with applying the cream. One important thing to watch with that is to never apply cream 2 hours before you go to rads. Also always pat it onto your skin, never rub it in.
I didnt use the olive oil but have heard it works. I would use Biotene dry mouth gel to help with the dry mouth. Maybe a humidifier will help with the dry throat. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2012 Posts: 47 "OCF Canuck" Contributing Member (25+ posts) | OP "OCF Canuck" Contributing Member (25+ posts) Joined: May 2012 Posts: 47 | Hi Cheryl,
I talked to the radiation oncologist yesterday and she prescribed Codeine along with stool softener and laxative. I used the Codeine before bedtime and it got me through for 4 hours. When I spoke to her today at our weekly review appointment, she told me to increase it from 3.5 to 5 ml (liquid form through G-tube). I will do that and it should get me through the night pain free.
One thing I found helpful is honey. It really soothes the sore throat.
What did you do to combat the dryness in the mouth overnight?
Joseph
Joseph 59 male pain in tongue strt 2/10/12, Dx SCC 3/19/12, confirmed Stg IV 4/5/12, Total Glsctmy & recon w/ flap from L thigh, neck disct, trach 4/27/12 G-Tube 5/1/12 55 nodes all clear completed 2 chemo 33 rad non-smoker, non-drinker, exercise daily, mostly vegetarian diet...go figure
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Dryness my deal is still a problem!!! There is notng one can do though a vaporizer may help a bit - I've heard of olive oil and there is biotene as well you can get it at walmart.  I skipped the codeine through my treatment as the day they gave me my peg spthey let me give myself a dose through my tube before I went home and I threw it up immediately. So I did without pain meds pretty much through my entire treatment. Keep a lukewarm glass of water neat your bed that may help with the night dryness - if you wake up take a sip and go back to sleep. Good luck on getting though it ... Soon you'll be at the end! Glad you figured out the rash!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2012 Posts: 60 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Apr 2012 Posts: 60 | Someone just recently suggested using Salogen which I guess is a mouth wash of some type. You only can get by perscription and supposedly it helps with dry mouth. I gargle with Salt and warm water before bed. I also gargle with baking soda and warm water and it seems to help a bit also. Just some suggestions?
10/10 IV OSCC metastatic to lymph nodes. 10/10 Peg,Port,Trech. due to rad scarring cannot swallow. 9/12 Pet clean. SCC back again 11/12. Tumor attached to jugular, Rad DX left side of neck 11/19/12. No Chemo or Rads. MRI on 1/11/13 for chronic pain w/pet scan 2/15/13.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Salogen is not a mouthwash. It is a pill also known as pilocarpine. This prescription medication will help produce saliva. It also has a side effect of making people sweat. I tried the medicine for only a short time and stopped using it as it was summer and it caused me to sweat quite alot. (Everybody knows girls dont sweat  ) ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2006 Posts: 43 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jan 2006 Posts: 43 | I sweat a lot and got really bad stomach aches after a while. It didn't produce any saliva for me. I'm a water bottle 24/7 kinda guy.
Type and stage of cancer:1st - SCC left base of oral tongue non HPV, T3N1M0 hemi-glossectomy 60 node rem, radX35 carboplatnum &Erbitux X6, Peg tube, lost 55 lbs 2nd - SCC right base oral tongue, surgery, Cisplatin & Erbitux x 16 3rd - SCC right base oral tongue, surgery, hope. | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Me too..l aqua... Naturale... No frizzante... Sorry I was in Italy for a bit. Every meal I downed a litre and a half of water... And carried a bottle on me. Frizzy water still burns... Ugh!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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