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#15309 04-27-2004 01:33 PM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | Darryl,
I echo Brian on this one. I got my PEG after 3 wks of radiation and even with it lost a good deal of weight. Once I was feeling better I played golf while having the PEG and I would go to work and at lunch time, lift up my shirt and hang the bag on a nail behind my desk and keep on working. I don't understand those who view it as macho or somehow beneficial to avoid having the PEG. It was a lifesaver for me and very unobtrusive. Once you are ready for it to come out, they just pull it out.
Best of luck with your treatment.
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#15310 04-27-2004 02:11 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Good for you, Darryl! In addition to calories, you need a lot of water, and the PEG makes that easy. Just make sure it is not COLD water, which is more uncomfortable than you can imagine. If you need some pain relief in a hurry, getting the meds via PEG really speeds things up. All in all, a good decision on your part. | | |
#15311 04-27-2004 02:32 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Darryl,
I had the PEG before I started the treatment and I did not use it to much for various reasons. However, at the worst of times it was comforting to know I had options and I switched all my meds to liquid and used the tube for that. Good luck on the procedure and keep a watchful eye in case you have issues with stomatitis from the radiation.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#15312 04-28-2004 12:33 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Darrell...good luck with your Pegging!
it`s a wise decision, we would have been in deep doo-doo without it.
Cheers Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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