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Joined: Sep 2009
Posts: 177
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Sep 2009
Posts: 177
Wow Erik, that is awsome information. I wish I would have had it a couple years ago! My biggest fight was trying to get even 1,000 cal a day. that was like 4 cans of meal replacment through my nose. Yuck, I don't miss that, but I know I was so weak from not getting enough nutrition. That was probably 80% of my battle.


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
The thing that struck my husband was that trying to eat during and for a time after treatment was a form of operant conditioning - everytime you eat, it hurts. Even when it doesn't hurt to eat, you still have those months of conditioning in your head when it did hurt.

The other challedge is that if you eat slowly, you get full before you have downed enough calories. My husband's solution to this part of it a protein shake with fruit, oatmeal, whey powder, and milk. He even adds cinnamon when he uses an apple in the shake. He has one for breakfast, and one for lunch at work (without the oatmeal).
Maria

Last edited by Maria; 08-02-2012 01:29 PM.

CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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