| | Joined: Feb 2012 Posts: 8 Member | OP  Member
Joined: Feb 2012 Posts: 8 | I am 1 year and 2 months after treatment for tongue cancer. Stage 4. I am just noticing jaw pain recurring for the first time in many months. It doesn't really hurt to open my mouth, but there is a constant, dull pain and when I touch my cheek on the outside it is very tender and sensitive. Any thoughts? I happen to be seeing my dentist and radiation oncologist this week, but I am wondering if I should see my surgeon too. My last PET scan was November, 2011. Thoughts?? Thank you so much!
Melissa Cohavi | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Normally scans after being treated for OC are every 6 months for the first couple years. If you are having pain after being pain free please bring this up to your doctors.
What kind of treatments have you had? Surgery only or also radiation?
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2006 Posts: 43 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2006 Posts: 43 | Personally, for me, when it comes to a physical exam for cause, I like my surgeon to be the primary authority. She has a more intimate knowledge of all of the tings she has done in there and is really the more skilled at the physical exam out of my care team. It usually works that she does the physical exams, my MO does the scans and my RO is a good resource for either.
Have you had any dental work done? Also like ChristineB asks, what kind of treatment did you have?
Erik
Type and stage of cancer:1st - SCC left base of oral tongue non HPV, T3N1M0 hemi-glossectomy 60 node rem, radX35 carboplatnum &Erbitux X6, Peg tube, lost 55 lbs
2nd - SCC right base oral tongue, surgery, Cisplatin & Erbitux x 16
3rd - SCC right base oral tongue, surgery, hope.
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