| | Joined: Oct 2005 Posts: 47 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Oct 2005 Posts: 47 | Hello,
I am diagnosed with a BOT cancer this month. I am going to have surgery at Beth Israel Hospital with Dr Mark Urken. This is my 5th occurrence. I don't have a date yet, but it will be soon. I would welcome any responses from people who have had similar.
thanks
Gina
scc 4/2004 r side tongue, flr of mouth.
neck disection,4 lymph nodes 34x rad,3X chemo
10/2007 r cheek. remove w/graft. 40 HBO dives.
01/2010 r cheek. surgery w/graft
04/2010,surgery remove lower right jaw, reconstruct. 4x chemo 25x rad. clear margins. pet 8/2010 clear
July 2012 right side bot cancer. surgery to remove, clear margins
4/2013 Surgery to remove cancer in lymph node near thyroid, clear margins
6/2013 start of rad 25X Chemo 7X
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hugs - and many blessings - we'll be here when you need us.. It's very bizarre that you now have BOT - hey they test you for HPV?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2005 Posts: 47 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Oct 2005 Posts: 47 | I don't know if they did test me for HPV, I honestly forgot to ask. I will though now. thanks for the hugs. Gina
scc 4/2004 r side tongue, flr of mouth.
neck disection,4 lymph nodes 34x rad,3X chemo
10/2007 r cheek. remove w/graft. 40 HBO dives.
01/2010 r cheek. surgery w/graft
04/2010,surgery remove lower right jaw, reconstruct. 4x chemo 25x rad. clear margins. pet 8/2010 clear
July 2012 right side bot cancer. surgery to remove, clear margins
4/2013 Surgery to remove cancer in lymph node near thyroid, clear margins
6/2013 start of rad 25X Chemo 7X
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | It's bizarre but it almost sounds like you've have two different types of OC - or - and hopefully this is not the case - they missed the initial BOT tumor? It's almost chronic - many blessings during your surgery... Hopefully your surgeon is awesome and he'll get it all!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2005 Posts: 47 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Oct 2005 Posts: 47 | why is this bizarre? and i doubt they missed anything, i get a PET scan every 6 months and this is the first time it has lit up. I did a nurse at if my case was a little unusual and she said no. She said cancer often runs along the nerve and shows up in different locations.
is that what you were talking about or did i misunderstand?
thanks so much for you input
Gina
scc 4/2004 r side tongue, flr of mouth.
neck disection,4 lymph nodes 34x rad,3X chemo
10/2007 r cheek. remove w/graft. 40 HBO dives.
01/2010 r cheek. surgery w/graft
04/2010,surgery remove lower right jaw, reconstruct. 4x chemo 25x rad. clear margins. pet 8/2010 clear
July 2012 right side bot cancer. surgery to remove, clear margins
4/2013 Surgery to remove cancer in lymph node near thyroid, clear margins
6/2013 start of rad 25X Chemo 7X
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi it just seems that there is so long in between recurrences - I guess it's well differentiated - good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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