| Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2011 Posts: 596 | I had to take prednisone by intramuscular injection until I was through my first trimester. That is longer than most, but my doctor was very cautious. I think at some point, I switched to suppositories. As I understand it, cancers that are hormone-sensitive are usually sensitive to estrogen compounds, but I'm not entirely sure.
I don't necessarily think the IVF is what may have played a part if hormones did at all...but I feel that they did in my gut. For example, if I had "the perfect storm" of things happening, such as genetic predisposition, recurrent trauma to the tongue, then add the hormones into the picture...who knows, but I hope we do know some day. Obviously, of all the women I know that were diagnosed and treated perinatally, I was the only one that I know of that had IVF and it was only one cycle. I know several women who have undergone several cycles. Plus, the meds they give depend on what is causing the infertility. In my case, I was ovulating fine, but I had a blocked tube its entrance due to left over tissue after my first pregnancy.
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11) SCC L oral tongue (no risk factors) L partial gloss/MND 3/28/11 @ 25 wks preg T1-2N0M0; no rads/chemo Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-) Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx. Various scans since rx ended are NED! Part of genetic study for rare cancers @ MGH. 44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | Thanks Sally Anne, Starting accupuncture first- if it doesn't happen by end of summer then I'm moving on to the eggs. Here is to the summer of love  KATE
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | My gut is that my pregnancies advanced my cancer, don't know why, just a feeling.
I have 3 daughters, the first two are 21 months apart and the 2nd two are 27 months apart. It was after having my 2nd I started noticing having subtle symptoms of fatigue and occasional ear pain. When I was pregnant with #3 I had a lot of "flare ups" yet all the while under the care of my pcp, ob/gyn and seeing the dentists every few months because I getting dental work done. I was either pregnant or nursing from 2004 til the day i was diagnosed. Oh and my first 2 were clomid babies, the 3rd one was a pleasant surprise!
I asked the dr why was I so advanced for having hardly any real noticeable symtpoms
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Ugh...push the wrong key.....
The dr said the cancer could have progressed really quickly due to all the hormones but suspected I must have had cancer after having my 2nd child.
I secretly would love the idea of having another little one however I was told chances are I wouldn't be able to plus I had an IUD put in place once I was diagnosed not knowing that the drs would put me on chemo that had a high possibility of making me sterile. It would be a miracle baby if I were to get pregnant though!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Kate - hope you have fun making that baby, can't wait to say congrats on your bundle of joy!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2011 Posts: 596 | Kate,
I wish you all the best in your journey into motherhood again! Who knew when we were younger that getting pregnant would/could be so technical for some of us.
Please keep us posted. I've got all of my fingers, toes, and eyelashes crossed for you!
xo, Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11) SCC L oral tongue (no risk factors) L partial gloss/MND 3/28/11 @ 25 wks preg T1-2N0M0; no rads/chemo Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-) Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx. Various scans since rx ended are NED! Part of genetic study for rare cancers @ MGH. 44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Good Luke to both of you! Misskate and sallyanne!
Last edited by Cheryld; 06-15-2012 09:27 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | oh thank you! Well despite all the chemo I'm not having fertility probs just miscarriages.- yay. Which at 39 is probably to be expected. Chemo doesn't actually sterilize you but can bring on early menopause and there is a 50% chance of that happening. So I got lucky. That is what my fertility doc said anyway. Well come September if I'm not having luck tapping into my freezer supply. Everything looks good though for trying au naturalle.
Thanks so much for the well wishes and happy baby thoughts. Sure would be nice to have a non dramatic health situation in that department! XOXOX K
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Aug 2011 Posts: 78 Likes: 1 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2011 Posts: 78 Likes: 1 | Kate, Good luck to you!! I think that you are very smart with your plan. I look forward to a triumphant new mommy post!! Have fun this summer!! Thinking all good thoughts for you!! Sally
Sally, 38 years old T1N0M0 Left Tongue Lesion, Moderately Differentiated 10 + year history Leukoplakia, Mild Dysplasia before cancer diagnosis 8/2011 Scheduled Partial Glossectomy & Neck Dissection 9-17-11
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Your dr is right, chemo can cause you to go in early menopause but depending on the chemo name, dose and length such as platinum based chemos, it can cause sterility as well. Being an oncology nurse I was very aware of what I was facing, I had two different types of platinum based chemos during my treatment and was asked beforehand if we wanted to do anything before treatment began to preserve eggs for future children. I just had my little one and my mind set was on trying to live so I said no! Lol. That's okay, I'm thankful for what I have and if it's meant to happen then it will.
I pray you are able to hold on to the next little bean and that it attaches and grows to be a beautiful little baby for you to hold onto. Wishing you all the positive baby vibes!!!!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
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