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Joined: Mar 2003
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Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Mar 2003
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Danielle, statistics are not to be worried about unless you need to worry. That may sound strange but even the worst cases of any bad disease have survivors. My intent was not to scare you or any one else. Just the same, recurrent SCC is not a happy statistical thing. The number I quoted was from something I read, but I am not able to find it after 4 hours of searching. Not to matter though, every person is their own statistic. forget about what you hear or read because your mom might very well be the person that knocks the statistics off the map.

To K, the lip is perhaps the best statistical location for this kind of cancer, my point about the scary thing is still a real number but we don't as individuals know our number. Do the best you can and live.


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Hi Ed,
The Hep C deal is in "idle" at the moment. They are not planning on any kind of treatment unless my STOG levels start to shift. I was also surprised that the chemo & radiation didn't make it worse. The last time I had Hep symptoms (jaudice, nausea, etc.) was back in 1975. My liver function looks pretty normal. They have never done a liver biopsy but they did a test for viral loading along with a PCV and DNA test. It blindsided me to be going through this cancer stuff then find out I had Hep C on top of it. My viral loading was fairly low.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Joined: Mar 2002
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OCF Founder
Patient Advocate (old timer, 2000 posts)
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OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,918
Likes: 65
Just a quick comment while I am at MDACC and am really tight for time. 28% of all stage one and two SCC's have occult mets to the cervical nodes of the neck. For this reason at many major cancer centers, even early stage lesions get limited radiation to the neck nodes, a known route of mets, and/or a neck dissection to ensure that those areas are free from malignancy. Gary is part right, there are occult oral cancers, or even cancers in general where we see the cancer first in an area of metastasis, but there is poor indication of where the primary is. But in surgical only solutions to oral SCC's, occult mets are the biggest problem. Surgeons who claim that they "got it all with clean margins" are doing a disservice to patients if they do not refer that patient to a radiation oncologist that they interface with. It is a big decision for both the patient and the doctors to decide if you are one of those one-in-four individuals in which an original micro met, which is not detectable through a CT or MRI, is something they should chase and deal with. Having an unclean margin is certainly not something that I personally would want to live with. That is not going to go away on its own, and needs to be dealt with. But this issue that anything that appears a year later is a recurrence is BS. One quarter of those are the original disease that was not dealt with completely the first time around. Then you have the issue of secondary primaries, which would include a recurrence in a site distant from the original tumor


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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