| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Anything acidic will hurt for a while - only now am I able to tolerate some acid... tomato sauce etc... spicy hell NO... though it's better. Sugar is almost back for me but I avoid it for the most part. Pop... ACK! tastes like chemical soup! hugs ... so glad you got through it... ;o)
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2011 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2011 Posts: 126 | I am ok with sugar, it is the spicy stuff that I can't tolerate. I feel like my tolerance for spice has actually gone down since radiation, which is very disappointing! I am from New Orleans and a few months after radiation I was able to eat crawfish, which was amazing, but now I can't even tolerate pepperoni's on my pizza. I am hoping my tolerance will improve again though before this crawfish season! wishful thinking, I know, but a girl can hope 
Emily - 24 years old at diagnosis
HPV-, no risk factors
T2N2b Squamous Cell Carcinoma
Left oral tongue, poorly differentiated
Hemiglossectamy, reconstruction, partial neck dissection
30 Radiation treatments, weekly chemo (cisplatin)
1/13/12 last day of treatment
Diagnosed October 2011
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Just be patient. You, your mouth, your body, hell your brain needs a lot of time to recover. I can eat and enjoy everything but it didn't happen overnight. Look back 2 years from the end of Tx and I bet you will be fine.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2010 Posts: 224 | Hi Glocita. Sorry I haven't responded ealier, I haven't been on this site in quite a while. I was diagnosed with Stage 3 tongue cancer on the right side of my tongue. It spread to one lymph node on the right side of my neck, and I had radiation done as well. I was 25 when I went through this. I am now 28. My docs said that mine wasn't from smoking, or HPV either, but that it was genetic predisposition. I hope you are doing well after treatment. Everyone is different when it comes to how they can handle things. I still can't do spicy or anything with vinegar, or real oranges. But if they are mandarin oranges in fruit cups, I can. Also some vegetable skins I can't do either, because of swallowing issues, but I had the right half of my tongue removed and reconstructed, so you may not go through these issues. I am glad to read you are through your treatment and staying so positive. I think we all fear reoccurence, especially when we were so young at diagnosis. Try not to let that fear control your life and all should be ok! Live every day to the fullest, and enjoy your life, .
25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
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