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| | Joined: Jul 2010 Posts: 95 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Jul 2010 Posts: 95 | Enclosed is a link to the video of the grand rounds lecture I gave on May 16, 2012 for the Department of Surgery at Texas A&M in Temple Texas. I talked about my experiences as a patient with head and neck cancer, dealing with the medical and psychological aspects of life. The link to the presentation is: http://www.youtube.com/watch?v=uYRkHZQy7_4I hope that you will find the talk informative. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Im looking forward to meeting you in September at Susan's walk. Here is another way for you to help other oral cancer patients. There is currently a very important study being done by Moffitt. Please help by taking a few minutes to complete the following survey. There is a minimum of 150 patients required for this study so every single one counts. It is done confidentially but there is a section at the end to add your input. I feel with your experiences this would be an excellent way to get your message heard. Moffitt Oral cancer Survey Thanks!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2012 Posts: 25 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2012 Posts: 25 | Christine,
Thanks! I just completed the survey.
BrendaN. 58. Dx2/2/12 Non-smoker Mod drinker Avid exercise- Maui 1/2 marathon1/22/12- Not HPV. Prob cause- 35 yr amalgams-.2/8/2012 SCC, partial glossectomy (right side) SG IVa, 29 nodes, one w/cancer Erbitux 2/29/12 1/week-7 weeks. RAD 3/7/12 M-F for 6wks-clr PET 7/12-2ndclear CT 10/25/12
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Dr. Brook - thanks for posting - very interesting talk. Thanks for posting. The concept of a wound as badge of honor or courage is not often spoken of in today's climate of physical perfection. I am reminded of Joshua Lawrence Chamberlain's life after the Civil War, living with pain from the shrapnel he still bore - but living a full, rich and meaningful life.
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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