Hi,
Where is Fire Island?
It sounds as though your hubby and my hubby were pretty close in their tx. The only difference is mine had MUCH more chemo before the radiation. He had a small break before we started radiation and the Erbitux. Everyone is giving good advice though as far as how it is going to get worse before it gets better. Hang in there though, it does get better. Kevin ate scrambled eggs almost every day until towards the end of tx. the he only drank Ensure and milkshakes for maybe 2 weeks, then back to eggs and eventually oatmeal. He still eats oatmeal in the am as it goes down the best. The rest of the day is better and he pretty much eats what he wants.
The dry mouth is also going to get worse. Kevin carried water everywhere we went and sipped continuously.
Best of luck. Hang tough and keep in touch!!
Kathy

For all of you extolling the benefits of the PEG tube, and there are obviously many, please keep in mind that the user MUST continue to use their swallowing muscles daily or they might end up with lifelong swallowing issues post Tx.

I also do not for the life of me see why more patients are not given the option of or even told about the nasal tube. I refused to have a PEG and paid a hefty price but was talked into a nasal tube in my 2nd week post Tx when I was literally near death because of my stubbornness/igornance. It took less than a minute to "install"; I used it for 2 weeks and I pulled it out myself at home.

Agreed. - its got to be more expensive to place though mobility and normalcy are affected it's much less invasive.