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| | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | Hello, Ilyse.
Thank you for sharing your story and emphasizing that it is so important to listen to your own body. You certainly are a survivor. Best of luck with the gamma knife. I don't know a lot about it either, but I'm sure there are some people here that could give you some advice/info.
Be well,
Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: Jan 2012 Posts: 112 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2012 Posts: 112 | Hi Ilyse. Thanks for your reply...
I also had stage 1, all nodes clear. had mi 1st control exams, all clear... but I�m really afraid reading about your case and knowing that it came back 10 years later.
How come? my doctor said if it do not come back in 5 years the chance is the same of anyone in the world. I�m really afraid!
As soon you get the lungs report just let us know! Hope it�s just inflammation. There�s a lot of cases like that.
December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
| | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Hi Ilyse, Wow!! Good for you that you were listening to your self. I think that is something we all need to learn and remember. Welcome to OCF. I am sure your story will help many here. Thanks.. Diane 
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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