| Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | YES YES YES. The letter worked perfectly. Just got back from the hospital where they had not only ordered the AMT button (which was difficult for them - they had to call three new distributors since MicKey is the regular one) but they also let my wife put in the new one while they watched. I had prepped her last night with YouTube videos of mothers changing infants' tubes but she was still a little nervous. Actually pulling out the old tube button herself and putting in the new one then inflating the balloon all by herself with the doctor just providing encouragement and commentary was just what I had hoped for. To top it off, they even faxed the prescription in to my medical supply company so I can get them directly from now on. (that's the next struggle as my medical supply house defaults to mic key (Kimberly Clark) also but if need be, I will change suppliers) Like Hannibal Smith in the old A team used to say: [quote]I love it when a plan comes together[/quote] Keep the Faith Charm
Last edited by Charm2017; 03-09-2012 10:02 AM. Reason: typos
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Illegitimi non carborundum.
Good job, Charm!
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Yay for you! Your perseverance paid off big time! So glad everything worked out the way you wanted.
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Maria
Your post brought back memories of my high school Latin teacher (a nun)and her lecture that despite what we read or heard, "don't let the bastards get you down" was NOT a Latin phrase and even if it were, it would not be Illegitimi non carborundum. It sounds right and even has the gerund as a perphrastic of obligation According to her, illegitimi was not the Latin word used for bastards in a perjorative sense, instead it was spurii (if the father was not known) or nothii (if the father was known0. This phrase is the best example of Mock Latin that almost everyone thinks is real Latin, because they translated each word out of context.
Sort of like the mistake that beginning Spanish students make when they cobble together words from the dictionary and come up with "Como Mucho" for "I eat a lot" when in fact, it is an idiom meaning "How much" (does it cost?). Our Spanish teacher (also a nun) used to love telling the story about a woman in a Spanish resturant getting frustrated when instead of telling her the menu item cost, all the waiters kept smiling and saying Si. Si.
Don't mind my pedantry, but with 8 years of Classical Latin and Greek, I tend to get picky about Pig Latin & Mock Latin in popular culture. Plus it was a very good memory that I had forgotten. Charm
Last edited by Charm2017; 03-09-2012 12:47 PM. Reason: typos
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | Yay on the buttons!! Great job by your bride. I love when we care givers learn something new and get to DO cool things!! Congrats on your perseverance. Kathy
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Yes Kathy, Anita, Maria, and Karen. The real heroine here is my caregiver wife. She, just like you and all the other caregivers here, put us patients to shame with your dedication, courage and fortitude. Christine has met Bev, my wife when we were out at the San Antonio Walk so she knows just how lucky I am. I hope your care receivers know how lucky they are to have you all. Charm
Last edited by Charm2017; 03-09-2012 03:23 PM. Reason: typos
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | So happy to hear it all went ok today! I was thinking of you and wondering how everything turned out. Great work by Bev!!!! She did very well changing the tube. Dont think I could have done something like that. Thats why I always call caregivers, angels. They are made of tough stuff! Sometimes being the patient is the easy part.
Yes, I have met Bev in real life and she is an absolute darling!!!! We got along as soon as we met. It was like we had known each other forever, same with Charm. They compliment each other very well and make a perfect couple! Please tell Bev I said hello! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Charm, I had to look up the spelling and found additional historical references in wikipedia - 'The phrase was adopted by US Army general "Vinegar" Joe Stillwell as his motto during the (first world) war.' as well as being in a Harvard athletic 'fight' song. My son, a UChicago grad, would use this as an example of Harvard's inferior academics. Glad it gave you a smile! Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Maria
Thanks for both the memory refreshed and extra facts. Sister Stanislaus Kostka never mentioned Vinegar Joe or Harvard, instead she talked about the missing Est which should have been added at the end for the periphrastic. Of course there was no Internet back then, let alone Wikipedia. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Glad you're eating again! And the rest is all Latin to me... Or not...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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