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Joined: Jun 2007
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Hi Penny! Congrats!!!! I hope you understand what your results mean. You doctor should have taken the time to explain to you whats going on inside your mouth. Try checking out some of the main pages on OCF. Here is a link and if you click on the blue writing it will give you more detailed info. This should help you to understand the lab wording.
OCF main pages, diagnosis

Try to think of this as your wake up call. Continue to avoid cigarettes, alcohol and mouthwash with alcohol in it. You dont want to irritate your sensitive mouth.

Best wishes with your healing. Be well!!!

Last edited by ChristineB; 02-20-2012 07:17 PM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2012
Posts: 27
Penny_T Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Jan 2012
Posts: 27
Thanks Christine,

The doctor did explain things mostly, I am just very particular. I like to understand what all the words on the pathologist report mean whether they are good or not. The language the pathologists use sounds all negative to me, lol, but now that I've looked everything up I know what to worry about and what NOT to worry about should I ever have to have something like this done again.

If and when I do find out what is wrong with me, I will post it here so that others who come in afraid they may have oral cancer will have it to reference. I think one of the most helpful things for me in staying calm was reading the posts from people who really thought it was cancer, but it turned out not to be. I was 99.9% sure it was based on my symptoms.

I will probably continue to read here, just because I think you are an amazing bunch and I don't feel this disease gets enough attention. I also know now that if someone tells me they have had a suspicious issue in their mouth for more than two weeks they will likely get an earful about the need to have it checked out NOW.

Thanks to all of you who have helped keep me calm through this process and I wish you all the best.


33 yr old female, former smoker of too many years.
Currently awaiting results of a neck ultrasound.
Joined: Dec 2010
Posts: 5,264
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,264
Likes: 5
You too so happy for you it wasn't cancer... smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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