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i don't know if it helps with your incision, but down the road i would recommend an electric shaver. my beard was very light after rad treatment, but losing nerves and feeling in my neck made shaving a chore. electric shaver really helped, and if i shave every day with it i look clean. it will pay for itself in 1 to 2 years because blades are so expensive.


after 3 sarcma flr mouth,fially removed, reconstruct from thigh muscle. 1/2 saliva glands removed, plus more glands than i can remember
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I also have another question. Is it normal to have a sore or blister at the end of your tongue after surgery? I have one and it kind of feels like when I had braces and they would cut the tip of my tongue.


Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
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You will my friend!


December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
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[quote=braziliangirl82]You will my friend! [/quote]I will have blisters?


Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
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Morning John, now I hope you're not a Yankees fan, I married one and never hear the end of it. Not that being from Boston has anything to do with it.
I thought I was the only one who savored a morsel of fresh baked bread. After not eating for a week, it was better than... most anything, I still appreciate food in a new way.
On the shaving picked up an electric razor, worked well and the scar reduces pretty quick, I'm six weeks out and no longer self conscious, most people barely notice. Good luck with the visit, ask lots of questions...


Nov2011Tonsil Cancer Stage3 T1N1 HPV+, Non-smoker, slight drinker
Dec2011 Radical Tonsilectomy (TORS),
Jan2012 Neck Disection areas 2,3,4
Feb2012 Opinions from 5 RO's decision for No Rads/No Chemo
Jan2013 all clear at 1 year , continue regular check-ups
Jan2014 all clear at 2 years, less frequent check-ups
Jan2015 all clear at 3 years, MRI, chest x-ray, blood work all good
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I mean you will be back to your kids soon. But i had some blisters too


December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
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[quote=braziliangirl82]I mean you will be back to your kids soon. But i had some blisters too [/quote] so this is normal? I feel like there are a few of them just at the tip of my tongue. But I don't really see them. If it weren't for these I'd be talking a lot better


Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
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Today I'm headed out in public for the first time without a bandage covering it. I'm not too worried about being stared at. I spend most of my life being gawked at and having people say and do rude things to me because I am gay. At least now those people will actually have something to stare at. I'm still nervous though. My mom will be with me and the rest of my family. I feel like I'm becoming a burden to my family even though they haven't said or done anything to suggest that. But I will be brave. Does anyone suffer from PTSD? My sister in law said I was probably experiencing it. I wish it would go away


Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
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Many people suffer from depression and other ailments related to being a cancer survivor. Some seek out therapists or other doctors. Others have found success with taking anxiety meds.

Im sure you look worse in your mind than you actually do. We are all our own worst enemies, especially with our appearances. Most people are so involved with their on things that they wont give you a second glance. Go out there with your head held high. You are still the same person inside so no matter what the outside shows. Be proud of who you are and never let anyone ever try to make you feel less of a person for any reason.



PS... When you have time, please add a signature. Click on the "My Stuff" tab then click on "profile". Scroll to the bottom and type in the white box, click submit. Its a big help in getting to know you easier. Check out what others have and make your own history thread for your signature. Thanks!

Last edited by ChristineB; 02-19-2012 01:58 PM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Dec 2010
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Hi John - glad you're feeling better that's awesome!!! With regards to the radiation if they recommend it - it will likely be within six weeks of your operation. That generally means they're worried about cleaning up any errant cancer cells - I wouldn't put it off. Good luck with everything - you should read up about Aussie Dave - he was 18 at the time of diagnosis. He's handled it brilliantly - and he certainly had it bad - he puts everything into perspective smile have a great day. Hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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