| | Joined: Dec 2011 Posts: 25 "OCF Canuck" Contributing Member (25+ posts) | | "OCF Canuck" Contributing Member (25+ posts)
Joined: Dec 2011 Posts: 25 | The past week, when I get cold, I get a tingling cold sensation across my upper back and down the back of my upper arms. When it first started happening, I was worried I was getting shingles but that is usually one sided, and there is no rash.
It was preceded by back pain and I thought that was attributed to snow shovelling. The back pain is gone.
It's bilateral and uniform in sensation. If I keep warm, it doesn't happen.
It's almost like, especially the back of my upper arms, the skin is hypersensitive.
Any ideas? If it lasts more than a week or so, I'll give my onc a call.
FNAB Dx SCC left lymph Sept2/11 (age 43), left tonsillectomy Sept21/11 confirmed primary. T1N2bM0. 35 IMRT both sides Oct17-Dec12/11. Cisplatin week 1,4,7. Non-smoker, non-drinker, p16+.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Ive had issues with my circulation after doing chemo/rads. It was localized to only my tongue when I went outside when it was very cold out. My cancer was on my cheek and jaw, not my tongue so I couldnt figure out what was wrong. It only happened maybe 15 times for about the first winter after finishing treatments then stopped as suddenly as it started.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Look up l'hermetes sign (sp?) I have the same thing from rads. When I walk my dog then Ben my neck looking down its like a shock runs down your spine. It does fade apparently
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Found it Cheryl  Remember it came up a few weeks ago. Christine also added a link. Hope this helps Roger  http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=144417#Post144417
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | Hi Roger there is a side effect associated with cisplatin which is specifically associated with sensitivity to cold and even more specifically - touching cold things (a feeling of mild electric shock when picking up a cold drink for example). The name escapes me right now but I will remember it at 3am in the morning and post then . Peripheral neuropathy is also a common side effect of cisplatin. Sounds to me like you have some sort of variation on a cisplatin induced neuropathy? Also, thyroid damage might make you sensitive to cold too ... just a thought...
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED Still underweight
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