| | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | I'm sorry for what you are both going through. I hope the second opinion gives you some options and hope, if not the clinical trials.
Please come here whenever you need us. Until then, I'm wishing for you some peace of mind.
Take care,
Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: Sep 2011 Posts: 7 Member | | OP Member
Joined: Sep 2011 Posts: 7 | Thanks again everyone! Our appointment was moved up to the 1st of this month so I took it. We have decided to go with USC Norris Comprehensive Cancer center for treatments. It sounds as if they would be giving him the same chemo as his last oncologist. Only difference is everything is done in one place rather then having to schedule seperate appointments for scans at another place USC does it all in 1 building. Plus if for any reason this chemo fails they have trials they can use. Andy will be having a scan next week to make sure the cancer hasn't spread and then begin his chemo treatments. Wish us luck!
10/8/10 DX SCC of tongue 11/9/10 rem 1 cm/mod rad neck dis
12/7/10 clear margins on tongue 12/28/10 g-tube n
1/3/11 30 RADS/6 cispla 4/1/11 flap 5/23/11 g-tube out
6/22/11 MRI clear 7/7/11 PET 2 spots 7/14/11 RND 8/1/11 PIIC
9/28/11 5 cyberknife 12/8/11 g-tube n 12/13/11 trach
Leigh Ann
Caregiver
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Leigh Ann, wishing you and your husband the very best with everything you both are facing. Being a caregiver is not an easy job. To me, they are angels! Please dont forget to be good to yourself thru this too. Take a couple minutes everyday just for you. Even if it is just to walk around the block or a long hot shower to relax. Im a firm believer that it takes not just the best medical care, an optimistic attitude and a great caregiver to get thru this. Please check in from time to time or or course anytime you have any questions. We are here for you both.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Sending prayers and blessings your way!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Leigh Ann: You certainly have my prayers for a successful treatment. It's good to know there are trials to help hubby if the chemo doesn't work. Others have had success with trials, so never give up. We are thinking of you and waiting to hear updates.
Hugs from julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | |
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