| | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Kevin is definitely dealing with this too. I told him what you guys are doing, but he doesn't seem interested in seeing anyone. Can you let me know how it works for Pat? Some days it is way worse than others.
Thanks
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Nov 2011 Posts: 53 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2011 Posts: 53 | Actually this is the best part of any treatment he has had. He only has to go for one week, possibly two. Basically he gets a facial every day for an hour. The OT is opening up and redirecting the fluid that had been pooling in the neck area. She is teaching him a series of light massages, he also sleeps with an ace bandage wrap around his neck and head. She said that anyone that goes through this should sleep elevated to prevent the fluids from pooling. That has been a tough one, but we found an inflatable wedge that goes under the mattress called Mattress Genie so I will let you know on all of it as we are done. Worst case scenario is he gets some gentle massages, and all of you on here that have been through this deserve it!!! The good news is that yesterday was his colonoscopy and everything looked fine, a couple of biopsies in the esophagus but the doctor really thinks that is nothing and said its common with someone that has had radiation to the head and neck. Onwards to the PET on February 6th,, then we will breathe! Have a great day!
Debbie, caregiver to Pat my loving husband of 32 years. T1
N2a M0 squamous cell carcinoma of the left base of tongue. Started on concurrent cisplatin and radiation, first
cycle was 09/26/2011, 35 rad, 2 chemo. Last Rad 11-11-11 at 1!!!!
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Hi Deb,
How's it going? Thinking about you guys. Hope all is well!
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Nov 2011 Posts: 53 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2011 Posts: 53 | PET scan in 2 hours, fingers and toes crossed! Hoping all is well with you guys!
Debbie, caregiver to Pat my loving husband of 32 years. T1
N2a M0 squamous cell carcinoma of the left base of tongue. Started on concurrent cisplatin and radiation, first
cycle was 09/26/2011, 35 rad, 2 chemo. Last Rad 11-11-11 at 1!!!!
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Any news? I can't imagine your nerves right now. Kevin isn't having one until mid March. Let us know....
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Quite concerned. I wish I had a way to contact you other than this and email. Waiting to hear and praying.
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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