| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Dave! Try not to worry too much. The same saying still applies, if a sore has been there for 2 weeks then its time to get it checked by a professional. Keep yourself busy so you dont worry too much about it. There are many different things that can go wrong inside your mouth.
About your cold or flu symptoms, sometimes something that appears to be a little problem can knock you on your butt. After everything you have been thru, your resistance is bound to be at least a little lower than what it would usually be. That would make you more susceptible to picking things up and a bug hanging around with you longer than it would someone else. Recovery from OC can take a couple years and even after that many of us have some late after effects.
Hope everything turns out to be ok and you begin to feel better very soon. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | "OCF Down Under" Senior Member (100+ posts) Joined: Sep 2010 Posts: 179 | Hi Dave,
I've got a few "lumps" on my tongue which is caused from rubbing against my teeth - maybe its possible for yours too? Cross my fingers for you for thurs.
35 Yrs old 03/10 SCC T1-T2 Partial Glossectemy end March - margins not clear enough. While waiting for resection - cancer returned,2 new cancerous lumps Re-section End May & flap from cheek attatched. Margins clear. Mid June - 4 teeth out Mid July -32 Rads and 3 Cisplatin 6th Sept 10 Finished Treatment!!
| | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | Hey guys, thankyou very much for your thoughts. It's managed to ease my mind a little, so thankyou. I see the surgeon tomorrow morning (Thursday morning Brisbane time) at 9.30am. Fingers crossed I get something positive out of it. Sorry I haven't had time to reply to you all individually, but I'll do my best to jump on here tomorrow afternoon to let you know how it went. I'm hoping to get some Christmas shopping done afterwards as well. We'll see where the day takes us though. Thanks again. I really appreciate the replies. I'm feeling reasonably good about tomorrow at the moment. I hope I'm ready for whatever news they may have for me. (good or bad..) If it's anything unusual though I assume I'll be sent for tests! Cheers guys  Dave
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | Hey guys  Sorry I'm late posting back on here with an update. The news was very good  It turns out the 'lump' I was stressing over was just part of my tastebuds. My 'Circumvallate Papillae' to be a little more precise. I couldn't compare it to the other side of my tongue because the other side isn't there. It's just the graft of muscle from my thigh. I'm extremely relieved and grateful leading into the festive season. I feel very fortunate to have had no real serious problems since the end of my recovery from treatment. I certainly don't take it for granted. Thankyou all of you for keeping me sane during the week. I almost feel embarrassed that it was something simple like this, but with my history I know it's better to be safe then sorry. I'd tried preparing for the worst. Thanks again for the free advice. You guys are awesome  Cheers ! Dave
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | "OCF Down Under" Senior Member (100+ posts) Joined: Sep 2010 Posts: 179 | So happy that its good news Dave!! Have a fabulous xmas and wishing you and everyone on this board health and happiness for 2012!
35 Yrs old 03/10 SCC T1-T2 Partial Glossectemy end March - margins not clear enough. While waiting for resection - cancer returned,2 new cancerous lumps Re-section End May & flap from cheek attatched. Margins clear. Mid June - 4 teeth out Mid July -32 Rads and 3 Cisplatin 6th Sept 10 Finished Treatment!!
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | Woooooooooooooooooo hoooooooooooo! Have an awesome Christmas!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Hooray - I had a pretty good fret going for you - now you can REALLY enjoy Christmas!
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | Thankyou very much guys ! Merry Christmas
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | Hey guys, I hope everyone is as well as possible. I'm currently involved in a project called 'Scar Stories' which is "A group photographic exhibition held at Bleeding Heart Gallery, featuring portraits of young cancer survivors." http://www.facebook.com/pages/Scar-Stories/181091615309118I thought I'd post this up (the above link) in case anyone was interested in taking a look. This is a project put together by a friend of mine, Jasmine who was diagnosed with Osteosarcoma (tumour in the knee) around the similar time that I was diagnosed. (here's an interview/article she did quite some time ago- http://city-south-news.whereilive.c...iration-on-national-cancer-survivor-day/) I met her through the CanTeen organization ( http://www.canteen.org.au/) here in Aus and it's been great meeting others just like her. It's really genuinely helped me heal so much in the mental side of things. Just talking, relating with others experiences while doing fun, interesting stuff.. Simple, but it works. If you'd like to keep updated with it & you're on Facebook, please 'like' the page once you click on the link I put at the top of this post. 11 of us have been photographed, all of us are cancer survivors in their youth. There's a guy called Chris I met recently who's had both legs, one hand, and all the fingers on his other hand amputated. He had a type of Leukemia and had a very bad infection. He's playing wheelchair rugby for Australia and is far fitter and stronger, and I even dare say happier then most. He's an inspiring guy. (Check out this video of him- http://www.ourworldtoday.com.au/video/chris-bond) He's just one of many of us involved. I'm looking forward to the Exhibition. Sorry someone more attractive wasn't used for the poster ! Feel free to take a look at the page and check it all out. Cheers !
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Wonderful site AND poster; excellent photo of you. I'm Facebook challenged - please give Chris my best. I lost my best friend to Leukemia a few years ago, and I am thrilled that Chris is doing rugby on wheels (a prospect just as terrifying for us faint-of-heart as rugby on two legs).
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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