| | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Sorry I have not been around for a while, Alhizmer's forum has been my other home for a while as my husband is getting worse.
Anyway positive vibes please, I have had an ulcer on the side of my tongue for 7 weeks (saw a GP 2 weeks ago) saw another GP this morning he said he will refer me to the head and neck clinic..
Now it is not what you know in this world but who you know..
I have an appointment this afternoon..
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Good luck... Hope it's nothing but a nasty canker with a worse attitude! Sorry about your hubby! Offering you positive vibes- and blessings!!! Take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Cherly
Thanks..Just got back from the hospital..biopsy Thursday..
Now just need to find something that will not worry my husband and then hope he forgets anyway ;-)
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | I guess that's the one upside to Alzheimer's but I imagine carrying this burden all by yourself doesn't make things easier - we do what we have to when a loved one is sick, but you should maybe take a little you time to relax - stress can have a real impact on your health and the health of your mouth! Take care and good luck Thursday - hoping for quick path results, and a big fat all clear!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | That's bad luck, Helen. My husband has early Alzheimer's too while I'm going through various biopsies. It means you are a support person instead of getting support.
Crossing fingers for your biopsy.
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Alpaca
I'm sorry that you are having to deal with two things as well, my husband now has virtually no short term memory so he has forgotten all about my problems, it's his birthday today and it has been a surprise to him at least 6 times today.
I hope you have some family support,I have not but my friends on TP (talking point) o the English Alzheimer's society forum are being a brick to me at the moment.
I hope you have something similar where you are..
Good vibes for your results..
Helen x x
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | So sorry that you are both dealing with this. As you say Maureen the person who has been your support and carer now needs looking after as well as yourselves. Not fair and very difficult for both of you 
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hoping your biopsy turns out to be not cancerous. You have enough going on with your husband. Im sure its not very easy being his caregiver. Please remember to take care of yourself too and keep us posted. Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Yippee biopsy was negative.. Going dentist Monday to smooth off a tooth as still got one sore spot.. Now I can maybe, go Christmas shopping.  Sunshine.. love and Hugs Helen x
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | YIPPEEEEEE, Helen. I just love reading your kind of post. What a wonderful Christmas present you got. God is Good!
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | |
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