| | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | OP  "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | Just wanted to update everyone. We've had to reschedule Steve's surgery. His dad has melanoma and a couple of months ago we were told it had spread throughout his body. He's taken a turn for the worse so Steve is flying down to Sydney tomorrow to spend some precious moments with him. I'll update you all on Steve's progress when he gets home and we get everything rescheduled.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
17/03/22 lost the battle. Missed dearly
| | | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | Hi Wendy,
So sorry to hear about Steve's Dad....:( Life sure can be tough sometimes. Keeping you all in my prayers.
Hugs,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | So sorry about Steve's dad Wendy. What hospital here?
Hope you can reschedule without problem on Steve's return.
Love
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | OP "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | thanks Shelley and Gabe. Steve made it safely to his dad's. His dad unfortunately isn't going very well and his doctor's say less than a week. So very sad. He's a lovely man. I'm so very glad Steve is there with him but also wish I could be there with Steve. This is going to be very hard for him. Steve's dad is at home and they have home care hospice coming in for him.
Gabe not sure about Steve's surgery yet. They said just to ring when he gets home and they'll reschedule it. Not sure if he will have to start hbo again and do another 4 weeks then surgery or if they will work something else out for him. We'll tackle it all when he gets home.
Feeling a bit sad tonight. I'm very fond of Steve's dad. Wish I could be there with him also and with Steve to support him. I realised today I can't protect Steve from everything. Wish I could but I can't. His dad is sleeping at the moment and is not in pain so that's all we can ask for. thanks for your love and hugs girls, it's very much needed at the moment xxx
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
17/03/22 lost the battle. Missed dearly
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Wendy:
Sorry to hear about Steve's Dad - my thoughts and prayers are with you both, and will be with Steve when he has his surgery.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Dec 2010 Posts: 99 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Dec 2010 Posts: 99 | My thoughts and prayers are with you in this very difficult time.
CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear. 12/11 peg out. 2/15 still all clear! 9/14 Prostate cancer treated with pencil beam proton therapy, best radiation experience. Keep it in mind as a treatment option for all tumors that can be seen including head and neck.
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | OP "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | Thanks for your thoughts and prayers everyone. Sorry I haven't posted for a while. Steve's dad sadly passed away on the 1st of November. Steve was with him at the time. He had battled melanoma for many, many years and when he had heard it had spread to other parts of his body and spine he pretty much had had enough. He'd accepted it and thankfully steve got to spend almost a week with him before he passed away. He's now at peace, which we are all grateful for.
On a happier note, Steve has now returned to work. He's doing fantastic and the smile on his face at the end of each day when he comes home is just wonderful. He is back at HBO and surgery is on Monday. Then 10 more HBO dives and we can hopefully move on with life again. It's amazing how much we are looking forward to going back to 3 monthly check ups. Anyway I will keep you all posted on how surgery goes on Monday. Take care everyone xo
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
17/03/22 lost the battle. Missed dearly
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | My condolences for the loss of Steve�s father and your father in law Wendy��may he Rest in Peace.
Wishing Steve all the very best for his surgery tomorrow.
It is wonderful to see that you both are returning to somewhat of a new �normal� life and that he is enjoying working again.
Will wait to hear how it goes.
Love to you both,
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | So sorry about Steve's Dad - I hope there is some level of comfort knowing he was ready and that he is now at peace.
Brilliant news about Steve and his job!!! This is a very solid step into the rest of your life together. Not to mention how this has obviously further improved Steve's view on life.
Such a strong man standing alongside an equally strong woman.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED Still underweight
| | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Hi dear girl, my thoughts are with you and Steve. My father died of melanoma. It spreads fast and is a tough one. I am deeply sorry for your loss.
Congratulations to Steve on his new job! What a great feeling it is to get back to parts of life that were derailed by OC! I am happy for you both!
It seems like life has settled in quite nicely for you and Steve since the move. Best wishes to Steve during surgery. I hope he has a speedy recovery and gets back to bringing smiles home to you every day!
Love,
Sandy
xoxox
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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