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| | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | OP  "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 | I have my first PET scan next week and the doctor said if it comes back clear(i said when !) then they will talk about reconstruction. Has anyone here had reconstruction after treatment for maxillectomy? I was thinking i would like my nose and mouth to look more like they did before but the obturator isnt too bad. I also think its easier for them tolook into the cavity for check ups with the obturator.
I guess i just wanted to see if anyone had had this and if it had worked!
Im getting used to things now and am also unsure if i want to go through anymore!
Im still here which is the main thing:)
thanks
Jayne
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there!! It will come back clear!!  I can't answer your orburator question, though I agree with you - no one wants their physical parts messed with particularly after they've already been through so much, but - I'm also a firm believer in returning to the best natural place possible - keep your orburator maybe until you've hit a point where your scans have been clear for an extended time, but then maybe after that a reconstruction would be a good thing as it will return you to the best possible normal! Ask your dr. What he or she thinks in terms of spotting a possible recurrence with a recon. That might ease your mind... But if you want wait until the pain memory isn't sooo fresh then make a decision! I felt the same way when the SO said something about debunking my tongue. I thought I'll wait a bit I'm only 5 months out of rads - likelihood it will take up to a year to finish healing etc... Talk to me then. My plastics guy concurred with me saying rads is a natural debulker! He didn't want to touch it for at least a year - figuring if he did before then, it might then be too small. Ask your dr. If it would hurt to wait a bit... But if it's a now or never prospect then it's a bit harder decision wise! Hugs!!! Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2009 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 126 | I have never heard of a reconstruction after a Maxillectomy. I would be interested in hearing more. What I was told from the beginning is that they can not do grafts to this area due to it being all bone.
Sharon
Sharon, 57; Hard Palate; T1, High Grade, DX 6-12-09, Surgery, maxillectomy 7-14-09, 33 RT (9-2-09 to 10-19-09); Prothesis (obturator). None smoker, non drinker.
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