| Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi there I can only reiterate what everyone else here has said - aside from the fact that it may not be cancer. Your family would probably be devastated that you didn't tell them. My mom died at 59 and it's been 10 years and I still miss her like crazy. Your husband is broken hearted over his mom, I cannot imagine how he'd feel losing you too. Some early stage cancers are dealt with by surgery. Please don give up even if it is cancer. Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2011 Posts: 287 | Hi Bean, you seem to be giving up even before it is conclusively declared as cancer. There are several people in the forum who have not only fought once but many times and have succeeded the battle and there are some who are fighting without giving up.
Please see a good ENT surgeon experienced in treating cancer, you may probably need another biopsy. Treating yourself is sometimes more important for your family than you, they need you. Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009] TX:Nodal Mets; 3xDCF[2011/05/05] TX: RND + PMMC Flap[2011/07/11] DX:SCC PNI+ECE TX:Re-RT 60Gy[2011/09/21] TX:Gefitinib 250mg[2011/12/18]
| | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2009 Posts: 329 | Bean,
I'm the biggest baby when it comes to medical issues. Like Christine said, scoping you get used to it. I had it done twice, scared the day-lights out of me it sounds worse than it is. When it was over with I said to my Dr. that's it he said yep. I want the scoping now it tells a lot of what's going on.
You now know the steps you have to take, per the other posters, do it, get the ball rolling. You have no time to sit and think about it for days or weeks, get moving on it NOW. Don't give up!!!!
Keep us posted. God Bless
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2. Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | Bean, as you see from all the survivors on this forum, head and neck cancer can be treated and beaten. If it is cancer the treatments are very rough going but it sounds to me that you have plenty to live for. I don't know what insurance you have (I believe you did say you have it) but with ins. it shouldn't bankrupt you. My entire course of treatments came to well into the 6 figure category and all that I paid of it with co-pays came to about $1500. Cancer is not a death sentence and your family would no doubt be devastated if you just gave up without a fight. At least, I would be, and probably angry as well. MHO.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Sep 2011 Posts: 14 Member | OP Member Joined: Sep 2011 Posts: 14 | I smoke and drink beer daily and I have made this mess and I don't deserve to upset My Family with what I have done to Myself,,,,I don't want any of You to get the wrong impression of Me though,,,I am a Good Person and Irish decent and this is just Who I am,,,,I am beyond terrified and the only Ones I have to talk to right now are all of You:( I am so lost and can't wait till the 29th to see the ENT Dr. I may not have mentioned that this thing under My Tongue, Floor of Mouth hurts alot so I can't imagine that Dysplacia can hurt this much makes Me think otherwise,,Hymmmm?
Last edited by Bean; 09-20-2011 06:49 PM.
| | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2009 Posts: 329 | Bean,
We aren't here to judge we're here to help. Wrong impression of you, No Way. Ok you drink and smoke time to put it away. You haven't made a mess look how many people on here who don't smoke or drink and they have Oral Cancer. If you have cancer you really don't know how you got it. It could be from smoking and drinking or some thing else. I blamed everything under the sun, my cell phone was a biggy with me.
I'm glad your going to see an ENT doctor, that's your first step. Don't give up we're here to talk to you anytime. Take notes at the Dr.s office or have someone go with you because what he tells you will go right over your head. I had someone go with me to all my appointments I couldn't remember a thing the Dr. told me. My head was some place else. Also get a copy of your medical records I did and it told me a lot.
Keep us posted, take care and God Bless.
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2. Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | Joined: Sep 2011 Posts: 14 Member | OP Member Joined: Sep 2011 Posts: 14 | Thank You so much,,,,I have to ask, how do you get a copy of Your Medical records,,,I didn't think They were for Our eyes to see hence They always put Your file outside so you an't see it? Lol | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Your entitled to a copy of everything in the file. You can ask them for a copy. Also no one here judges. I could be he smoking that caused your trouble - but I'm practically a vegan, don't drink have never smoked, or done drugs and I had a tumor in my tongue. Cancer can be indiscriminate. Fell free to talk, we'll listen- but do try to quit smoking if you can. ![smile smile](/forums/images/graemlins/default/smile.gif) take care,
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2011 Posts: 571 | Hi Bean,
You seem the type to carry the weight of the world on your shoulders adverse to asking for help from those to whom you are closest. Sometimes it is a gift to allow people who love you to do the giving for a change--it is generous to receive instead of always giving. Don't be afraid to involve your family. Allow them to be the support you are to them. If this is just a wake-up call, it is an easier opportunity to involve them in what you have been feeling.
Please try to distract yourself until you see your ENT on the 29th. Try to occupy your mind with activities you enjoy. Worrying is a waste of energy and can be physically harmful. When you start thinking about what can go wrong, switch channels and think of all that is going well. After all, it could be so much worse. The pathology could have been positive for a difficult to address malignancy.
Try to keep your eyes on a happy future with your family. Be gentle with yourself. Treat yourself kindly and patiently. Sending you wishes for peace and contentment.
Sandy
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2009 Posts: 329 | Bean,
Cheryl is right. Go to Medical Records sign a paper for release of your medical records. In a few hours you should have them. Those are your medical records, no one can tell you that you can't have them, if they do put up a big stink they are YOURS.
Take care, Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2. Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
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