| | Joined: Mar 2002 Posts: 4,918 Likes: 70 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 70 | HPV+ oral cancer patients have the lowest rate of recurrence. That is a known. So unlike tobacco people, getting on with your life as an HPV+ patient should be less stressful, and you should just incorporate good "general lifestyle habits" such as exercise, proper diet, and stress reduction to stay healthy combined with routine check ups just to be sure. I also find it interesting the comments about stress here. Stress is a of function of how you react to things in your life (positive and negative) and not a function of those events themselves. Negative events in your life have negative impact on you (in the form of stress) if you let them. Obviously this is often easier said than done, given the emotional nature of the human animal. But we all have control over how we respond to stressors. The stress that kills you, comes from inside you. The nature of our existence is one challenge, small or great, after another. In heart disease studies which is heavily tied to stressors and diet, they put as much stressor influence weight on positive events like buying an new house, having a child, marrying your loved one, as they do for negative events like losing your job, a death of a family member etc. Stress is a function of perception and reaction, both are things which you can mold and control. Uncontrolled stress does weaken the immune system. People catch more colds and have other minor heath issues when they are under stress. Herpes simplex one or two, which you get for life, has a documented tendency to manifest itself and come out of dormancy when individuals are under emotional stress. While I am far from a "new ager," I am a big believer in meditation (TM), and counseling for people to get past issues that stress them. Yoga or even martial arts as both exercise for the body and to develop the mental disciplines to keep things in perspective and relative to their real importance is also valuable.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | So well stated, Brian. It really helps to remember that we may not be in control of the events themselves, nor of the people causing them, but we can choose how we respond to them.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Eric, how did I know you would say something like that? You are too funny and naughty. 
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I would submit that often we are not even aware of stress issues that our body/mind/immune system is dealing with and therefore we can not "deal" with those. Also the "stressors" that we are aware of are often not easily deal away with either. JM2C's
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | David wrote - "I would submit that often we are not even aware of stress issues that our body/mind/immune system is dealing with and therefore we can not "deal" with those. "
That's where meditation is helpful - it helps you to identify the noise (stress) in your life, and to help deal with it. We all need a quiet place in our own heads look out from.
I should practice what I preach and meditate more.
Last edited by Maria; 09-01-2011 01:53 PM.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | True, sometimes you don't realize you're stressed or that you are even depressed. Meditation does help. I started getting into it when I noticed my son had discovered meditation while going through treatment. I think, for me, results didn't happen all at once, though. You can't just do it once and then say, "Well, I'm done. it didn't work". And quit. It takes practice, and pretty soon you see results. I developed a short mantra to repeat and even incorporated the mantra into my passwords for internet access so that every time I logged on, I would have to think about the mantra.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jul 2011 Posts: 131 Senior Member (100+ posts) | | Senior Member (100+ posts) Joined: Jul 2011 Posts: 131 | http://www.sciencedaily.com/releases/2010/03/100316142551.htmHPV Vaccine Protects Patients from Cancer Recurrence, Study Finds This is reference to cervical cancer and females, but I wonder if I should ask my MO about this. I really don't want to go through this again.
Dx: 3/11 Stage III glottic laryngeal SCC HPV 16+ Tx Start: 7/18/11 chemoradiation 7wks - Tomotherapy IMRT x 34 / Cisplatin x 7 Tx End:9/1/11]-[as of 1/20/12 - ALL CLEAR!]
| | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts) Joined: May 2011 Posts: 287 | Hank, please read this thread, though more in context of insurance coverage but related to HPV vaccine: http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=139061#Post139061Important posts from Brian and David. This will help you. Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009] TX:Nodal Mets; 3xDCF[2011/05/05] TX: RND + PMMC Flap[2011/07/11] DX:SCC PNI+ECE TX:Re-RT 60Gy[2011/09/21] TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I have said this years ago. In a conversation with Dr Anna Guiliano, Chair of the Dept of Epidemiology at Moffitt and leading HPV researcher who I talk to often and we have traveled to Tallahassee and the CDC to address HPV issues, she told me that if I were still sexually active with multiple partners that I should get the vaccine to protect against future exposures.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Well, that's interesting. Changes the advice I give my son! Any chance of tacking this at the top of the forum?
Last edited by Maria; 09-02-2011 06:25 AM.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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