| Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | You can cross your toes and eyes too.... I have my follow up scan - the first tomorrow - just a little nervous about the results which I get on aug. 3 - I feel great but there's always that fear so if you all could take a minute to say a prayer for me that would be awesome, alla, buddha, the Devine or just plain god is accepted- to me they are all one and the same. I have been blessed - so far so I'm duly grateful for all the wonderful people here - and my family. Hugs to you - you all are amazing and I in turn will say a prayer for you, your loved ones, both those that are suffering, healing, or in good health. Take care. ( sorry if I sound a little bible thumper - ish - I do believe in God but I swear I'm not crazy religious!!!  )
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2011 Posts: 267 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Apr 2011 Posts: 267 | I'm not especially religious but I find myself praying a lot lately. Mostly for people here and people I meet at the hospital. It feels like helping. I will definitely add you to my prayers. Best of luck with your scan. I hope your results come back quickly and are exactly what you're hoping for.
Tracy - 33 at diagnosis SCC right ventral tongue Dx 4/11. T1N2M0 1st resection 5/11. Bilateral neck dissection: 2 pos nodes 2nd resection w/graft 6/11. Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11. 3 month MRI and PET/CT all clear. 6, 9, 12 and 24 month post treatment MRIs all clear. | | | | Joined: Nov 2010 Posts: 167 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Nov 2010 Posts: 167 | Good luck today Cheryl! I'm sorry you have to wait a week for the results. Not sure if this will help or not but I'll share this - in my quest to be a better person after cancer than I was before, I read the "Power of Now" my biggest take away is to ask myself when I'm troubled "what do I need now?" whatever your answer is to your own question is, you ultimately only have 2 choices 1) make a change 2) if you can't make a change, then accept it - those are really the only 2 options. Going through that mental task has helped me with many stressors lately but especially waiting for test results - if there's nothing I can do to change the wait time then I found that if I accept it and realize that right NOW there is nothing more that I need - it's like you've done all that can be done to address the issue and there's satisfaction (for me at least) in that - worry isn't going to change anything - so if you accept the things that you can not change then all you're left with is this moment right now and at this moment there is nothing to fix or change - all there is in this moment is an opportunity to enjoy this moment. This is in contrast to my Type A personality but I found it works for me. Plus - the author's Canadian so if you haven't read it you should! That being said - prayer helps too - so I'll say a prayer for you as you wait for good news!
Take care!
Jennifer (39) 02/10 SCCa Tongue & Base, HPV- 03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out Back at work and feeling good 03/24/11! 12/20/11 - 9 month f/u PET/CT - all clear!
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | What Jennifer just said from the "Power of Now" - and best wishes and prayers!
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | Thanks for the advice and prayers - I've always been a now type person. When I had the very small node highlight on my baseline scan I knew it was a decent chance that it wasn't cancerous based on location and three Drs opinions - but decided to have rads on that side too - just to be on The safe side- as that was not my operative side. I asked the dr. If was your mother, sister, daughter etc... What would you do... ? He said exactly what I was doing. He also said Cheryl if you are worried - don't be you are doing everything you can/should - i had to accept and believe in that. I feel the same about my scan. I am doing what I can - I am eating healthfully, doing whatever I can to recover and I feel good. I dont like waiting but it is par for the course... There are other people who have to wait as well, so im not alone - worrying doesnt help only hinders - that said a little prayer, blessings and luck, can't hurt!  Hugs to you all.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2011 Posts: 117 | Cheryl, everything will come out fine. You've done everything you can do and you have the best attitude. You have been such a big help to me during this horrible time for both of us.... You are about a week ahead of me schedule wise,so I always use you as a guide. I will be thinking of you all day tomorrow and sending healing thoughts and prayers your way. Then we can do the happy dance after you hear the good results next week! Hugs, Ingrid
DX 12/6/10 of T3 SCC Tongue. Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear. Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2009 Posts: 329 | Cheryl...Prayers headed your way. I know how nervous you are everything will be fine. In Sept. I'll be going through the same thing.
Good Luck...Best Wishes Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2. Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | Hugs to you all you are amazing and giving! Ingrid you'll do fine too!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Dec 2010 Posts: 291 | Cheryl, I think you're going to be just fine. But of course you are in my thoughts and prayers.
'Who among you, through worry, can increase your life by even a minute?' That is a modern paraphrase of part of a verse from the New Testament. Whether a person subscribes to the Bible or the New part of it, you have to admit that it is funny to think that anyone would think worry can increase your life. That is one of the ways I get through my days, "working" on the realization that worry is pointless. Yes, I, being vulnerable to worry too, have to work at it, mostly by consciously letting it go. Best, Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA GIST tumor sarcoma, removed 9/2011, no chemo needed Clear on both counts as of Fall, 2021
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Cheryl: You know you've got my prayers for tomorrow - been sending them for days, so that counts for something  . I just know you'll be fine, but I also know how we sweat out every one of these tests. I'm the worst, I think, on the whole Forum. I need to eat some Wheaties, or something, so I can be tough like a lot of the Forum members are, or at least seem to be. Anyway, prayers galore headed your way. Hugs from julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | |
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