| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I am always worried as I never know how religious a person is or If they are religious at all. For me I do believe in god -my religion is RC - but I believe god is bigger than organized religion - I believe that who you are, how you treat others, including animals, and the earth - is the most important thing - and going to church isn't a necessity... Serving god by being the best person you can be is more important that 75 hail marys. That said - I wanted to share something with you that may give you some comfort at some point. - losing someone you love is never something you want to do. My mom was 56 when diagnosed with lung cancer. She was my best friend, sister, and mom. I still miss her. She never had a lot, worried constantly about money, but despite the fact that she had little, she would always give food, money, rides to people who had less. She was also the neighborhood cat lady and had a love for animals - approximately a month before she died (at 59) she was diagnosed With six brain tumors, two of them egg sized. The dr. Told her to go home and spend time with her family. I would visit her a couple of times weekly, clean her house, maybe cook. She lived about an hour from me. I cherish those times now but mostly the good times. I was also working at the time so getting there wasn't easy but important to me. The night before she ended up in the hospital she and my step dad showed up for dinner. We were supposed to go to dinner at a restaurant with my daughters soccer team and my mom was to come. When she arrived I saw her get out of the car, I just knew she wasn't going to be with me for much longer. Little did I know that was the last Time I was really going to get to spend time with her. We decided to have a nice family dinner at home and it was great. That night when she went home she suffered a bowel obstruction ended up in the OR - the drugs they had her on stole the person she was for the next week and then she passed away from septicemia. I loved my mother more than anything but I was glad she died the way she did - quickly and without pain. I desperately would have loved to have more time with her but I truly believe god took her then because she was an amazingly giving person and he didn't want her to suffer. Perhaps it is the same with your hubby. God bless
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Jill, I'm devastated to read this. My heart goes out to you. I hope you know that we're all here for you and always will be.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Oh, Jill,
I'm so sorry you had to go through this. My husband also died suddenly, unexpectedly and in pain. It was awful. I know how he died (airway closed); I just don't know why: he wasn't ill with anything that should have killed him.
Anyway, you are facing a rough road, and there is no easy way to get through it. Take it one day at a time.
My thoughts and prayers are with you. Please keep us posted on how you are doing.
Peace.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Peace be with you and your family. How tragic...I am so sorry
Wasn't the 20th the day for his surgery also if I was reading correctly? Wow...no words
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | | "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 | Thinking of you with love and peace x
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Jill, I'm so sorry to hear about your husband. You and your daughter are in my thougths.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | Jill, I am so sorry for your loss. You and your little girl will be in my thoughts and prayers. How devastating. Im so sorry. he was truly blessed to have you and his daughter at his bedside.. God bless you always.. May God hold your hand and your daughter's hand and give you the physical and mental strength to deal with this loss..
nicki
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
| | | | | Joined: Jan 2011 Posts: 123 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jan 2011 Posts: 123 | Thank you everyone. He was scheduled to have a total glossectomy the next day. I am grateful he didn't have to endure all of that. The funeral was yesterday and it was a beautiful service. He was loved but so many.
Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Jill, I am so sorry that you lost your beloved Ken. You and your little daughter are in my thoughts and prayers.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Jill
May you be comforted by the good days before this began. Special praers for strength for you in raising your daughter.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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