| Joined: Jun 2011 Posts: 12 Member | OP Member Joined: Jun 2011 Posts: 12 | ok thank you Eric. Ill check into that. I appreciate your advise. have a good day Patty | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | I used glaxal base... it's thick but rubs in well and is not greasy. I used to used it right after radiation and before bed.
good luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I was given Beta-Val prescription cream. Dont rub it in, Pat it on and let it soak in. Ask the doc for prescription cream for your mom. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | "OCF Down Under" Senior Member (100+ posts) Joined: Sep 2010 Posts: 179 | Patty i while going through radiation i used to make smoothies with fruit, full cream milk and 2-3 tablespoons of full cream milk powder. I'd have one every day. This is good and nutritious and there is no sugar so good for the teeth too.
Oatmeal cooked in full cream milk for about 20mins on low heat and blended was my daily breakfast and sometimes dinner too - for 3 months. This is also healthy.
Last edited by minniemoo066; 06-18-2011 07:03 AM.
35 Yrs old 03/10 SCC T1-T2 Partial Glossectemy end March - margins not clear enough. While waiting for resection - cancer returned,2 new cancerous lumps Re-section End May & flap from cheek attatched. Margins clear. Mid June - 4 teeth out Mid July -32 Rads and 3 Cisplatin 6th Sept 10 Finished Treatment!!
| | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | Patty, I send courage to you both. Everyone has given you marvelous advice.
During RT I used Miaderm, which helped to a point. When things got really bad toward the end I went to Silver Sulfadiazine cream. Great stuff and I recommend asking about it.
Please keep us posted. Your mother is lucky to have you!
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Jun 2011 Posts: 12 Member | OP Member Joined: Jun 2011 Posts: 12 | thank you all for all of your wonderful & helpful advise. my mom is now also on OCF and has been reading along.. so I thank you! so glad that we all have each other! blessings to you all! patty | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | I used Biafine and highly recommend it. It is also supposed to help prevent the burn.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Jun 2011 Posts: 6 Member | Member Joined: Jun 2011 Posts: 6 | Hi there I am new to this forum but I think I might can give you some information that will be helpful. I had a maxillectomy on my left side because of adnoid cystic carcinoma. I had more done a little more intailed. Part of my orbital bone and the cancer was wrapped around one of the nerves to my eye. But I did have 7 1/2 weeks of radiation. I was told about the dry mouth also. I was told the secret to dry mouth was to carry a bottle of water around with me and sip it and during the night. I have had no problems with dry mouth except for at night because my mouth isn't closed all the way. Do not sleep under a ceiling fan or have a fan blowing on you because this makes it worse. That was hard for me to get used to. lol The radiation was not bad. No pain. I did make a cd of my favorites and they let me play it during the treatment. Helped to make me not so nervous at the beginning. Two weeks after treatment I had really bad sores on my tongue which made it hard to eat or drink. A friend of mine to me to try Colgate Orabase. It's a white creme and it is a wonder drug. Over the counter. I don't know what I would have done without it. Let me know if I can be of help to you. God bless you and you will be a great comfort and help to your Mom. Tell her I said one day at a time. | | | | Joined: Jun 2011 Posts: 12 Member | OP Member Joined: Jun 2011 Posts: 12 | HI thank you for the information, I will pass it along to my mom. they told her she would have no salivary glads left after the radiation. did you try using the manuka honey? i have read others used it and it helps but my moms radiologist said not to use it because its an antioxidant.. | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi there.. With regards to the honey it has antioxidant properties, however less than two percent of the honey's nutritional properties is comprised of vitamins and minerals, none of which are the vitamins the cancer center warns against taking as a supliment vitamin, c, e, and A - and selenium - this was from a pamphlet that my radiation department handed out. The honey is 80% sugar, 18 % water and two percent vitamins like, thiamine, niacin, etc.. No vitamin, a,c,e or selenium. Which are the anti oxidants they tell you not to take. My dr. Approved it - and there is a cancer hospital doing a three year trial on use of the honey in Head and neck cancer patients and prevention of mouth sores. But I totally understand your dr.s concern. And your reluctance.do what he says. Best of luck to you and your mom... Hope she gets through this all and begins to feel better.
Last edited by Cheryld; 07-07-2011 08:26 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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