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ok thank you Eric. Ill check into that. I appreciate your advise.
have a good day
Patty

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"OCF Canuck"
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I used glaxal base... it's thick but rubs in well and is not greasy. I used to used it right after radiation and before bed.


good luck.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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I was given Beta-Val prescription cream. Dont rub it in, Pat it on and let it soak in. Ask the doc for prescription cream for your mom.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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"OCF Down Under"
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Patty i while going through radiation i used to make smoothies with fruit, full cream milk and 2-3 tablespoons of full cream milk powder. I'd have one every day. This is good and nutritious and there is no sugar so good for the teeth too.

Oatmeal cooked in full cream milk for about 20mins on low heat and blended was my daily breakfast and sometimes dinner too - for 3 months. This is also healthy.


Last edited by minniemoo066; 06-18-2011 07:03 AM.

35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
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Patty, I send courage to you both. Everyone has given you marvelous advice.

During RT I used Miaderm, which helped to a point. When things got really bad toward the end I went to Silver Sulfadiazine cream. Great stuff and I recommend asking about it.

Please keep us posted. Your mother is lucky to have you!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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thank you all for all of your wonderful & helpful advise. my mom is now also on OCF and has been reading along.. so I thank you! so glad that we all have each other! blessings to you all! patty

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I used Biafine and highly recommend it. It is also supposed to help prevent the burn.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Hi there I am new to this forum but I think I might can give you some information that will be helpful. I had a maxillectomy on my left side because of adnoid cystic carcinoma. I had more done a little more intailed. Part of my orbital bone and the cancer was wrapped around one of the nerves to my eye. But I did have 7 1/2 weeks of radiation. I was told about the dry mouth also. I was told the secret to dry mouth was to carry a bottle of water around with me and sip it and during the night. I have had no problems with dry mouth except for at night because my mouth isn't closed all the way. Do not sleep under a ceiling fan or have a fan blowing on you because this makes it worse. That was hard for me to get used to. lol The radiation was not bad. No pain. I did make a cd of my favorites and they let me play it during the treatment. Helped to make me not so nervous at the beginning. Two weeks after treatment I had really bad sores on my tongue which made it hard to eat or drink. A friend of mine to me to try Colgate Orabase. It's a white creme and it is a wonder drug. Over the counter. I don't know what I would have done without it. Let me know if I can be of help to you. God bless you and you will be a great comfort and help to your Mom. Tell her I said one day at a time.

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HI thank you for the information, I will pass it along to my mom. they told her she would have no salivary glads left after the radiation. did you try using the manuka honey? i have read others used it and it helps but my moms radiologist said not to use it because its an antioxidant..

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"OCF Canuck"
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Hi there..
With regards to the honey it has antioxidant properties, however less than two percent of the honey's nutritional properties is comprised of vitamins and minerals, none of which are the vitamins the cancer center warns against taking as a supliment vitamin, c, e, and A - and selenium - this was from a pamphlet that my radiation department handed out. The honey is 80% sugar, 18 % water and two percent vitamins like, thiamine, niacin, etc.. No vitamin, a,c,e or selenium. Which are the anti oxidants they tell you not to take.
My dr. Approved it - and there is a cancer hospital doing a three year trial on use of the honey in Head and neck cancer patients and prevention of mouth sores. But I totally understand your dr.s concern. And your reluctance.do what he says. Best of luck to you and your mom... Hope she gets through this all and begins to feel better.

Last edited by Cheryld; 07-07-2011 08:26 PM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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