| | Joined: May 2011 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2011 Posts: 62 | Hi Cheryl & Anne-Marie,
Thanks for your responses. I had a quick question regarding suggested daily frequency and timing of the salt/bicarb rinses and Manuka swishes. I am assuming that 3 to 4 times a day, and just before meals?
Best Regards,
Chetan
Chetan
SCC, lateral tongue, age 53, Tongue resection & neck dissection 5/6/11; T1N2BM0, RTX (35 sessions starting 6/8/11)/chemo (3x starting 6/10/11) Last cisplatin 7/22. RTX complete 7/27. PEG in 6/9/11, out 8/31/11
| | | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Dec 2010 Posts: 291 | Chetan,
I don't mean to butt into the conversation, but I used the baking soda/water several times a day, did not count the number. My MO said as often as you like. My RO said it would make my mouth drier so would depend on that. I had quite a bit of saliva for most of radiation so I used it without regard to that. I bought Manuka honey after treatment, and did try it on my sores I had afterwards, "hedging my bets" is what I called it. I think it does soothe them for sure. I only used the honey once or twice a day then. I will attest to the honey being tasty, now that I have more taste buds back.
I remember thinking the treatment time would never pass; it did! Yours will too. Look at it a day at a time, maybe a week, and it will seem to go faster.
Best,
Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there - I agree use the rinses as needed - I used to rinse then swish eith the hiney - honey cleans so if you've eaten then clean out anything left in there with the rinse then do the honey - that way it has some time to work.
Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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