| Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | "OCF across the pond" Senior Member (100+ posts) Joined: Apr 2011 Posts: 131 | Well I'm having a bad week! Chemo knocked me back I can't seem to eat they gave me ensure and I tried last night then threw it up! I haven't eaten prop for a week so maybe slowly is the way. I got 8 rads left and that really tires and makes me nauseas. Sorry I'm a wingebag today! I havent cleaned my ob so much cos feel so bad buti will try today Jayne x
Scc nasal cavity /hard palate Surgery removal of septum and roof of mouth 15/3/11 cl margins Rt and cisplatin 6 weeks starting 24/5/11 Obturator
Age 45
| | | | Joined: May 2009 Posts: 132 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2009 Posts: 132 | Oh, Jayne, I'm sorry you're having a bad week! You're right about going slowly with the eating; keep trying different liquid things (have you tried making a smoothie in the blender?). Do you have meds for nausea? I had to take them often during treatment, and they really helped.
Don't worry too much about cleaning your obturator -- just stick it in a glass with some warm water mixed with mouthwash and then give it a quick brush with the toothbrush. No need to fret about it too much.
Take it easy, honey -- you'll get through this. I wish I had a quick fix for you, but you just have to hang in there. You're counting down now! Only 8 to go! Keep writing anytime you need to vent. We're here for you.
Chrissy
Stage 2 SCC upper right palate Hemi-palatectomy and maxillectomy 5/28/09 Six teeth gone IMRT x30 starts July 13. Completed 8/26/09 Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Sorry you're having a hard time - but you're in the home stretch hon. The next 3-4 weeks are going to be hard you'll get through. My hospital gave me 4 meds when I left after chemo - three of them were "have to take" as in I had to take them twice a day for three days and one was a one dose. The fourth med was an anytime med - it was for breakthrough nausea.did they give you this? If so take it before you eat. I too had a few days when food just wasn't my friend - and I hate throwing up! I think I lost a few pounds after the second chemo because I was just too nauseated to eat. But - I lost the bulk of my weight at the end... The last three days of chemo and the first week and a half after. That wasn't nausea related though. Mostly pain. No problem on the wingeing - you have very right!!! Take care and try to relax. Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | "OCF across the pond" Senior Member (100+ posts) Joined: Apr 2011 Posts: 131 | Well had 5 week check and doc says it looks fine. Got to go in 4 weeks for check up and scan. It's scary it brought home my fear of it coming back. I don't smoke or drink and eat well but if it's going to come back it will so I suppose you just have to get on with life or you just wont have a life! I have been eating and notgsined weight so I shall eat more if I can! Theyalso said my hair won't grow back which is a bummer but I can live with it! Hope you are all doing ok Jayne x
Scc nasal cavity /hard palate Surgery removal of septum and roof of mouth 15/3/11 cl margins Rt and cisplatin 6 weeks starting 24/5/11 Obturator
Age 45
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Who said your hair won't grow back? Why not? I'm 3 months post rads and I have an inch of hair ( my hair grows fast) in the areas affected that were furthest away from the radiation site - and about half an inch closer to the areas - it wasn't until month 2 my hair started coming back! You may have a patch that is permanent but not all of it. My hair is thin but I have a lot -I lost scads all along the collar line - up to the middle of my ear and it thinned up to the crown mostly on the left Side - the area that was really blasted!! Not fun - I look bit like a scarecrow! So I pull it back into a non existent bun! Were talking what looks like maybe 100 hairs!!! The rest of it had breakage! It should grow back! And as for the fear I know how you feel - we all do - and you're right I look at it this way - I've done all I can treatment wise - I've adjusted my diet - and try to meditate daily! I've done what I can to get and stay healthy - if it comes back I'll fight it then but other than what I'm already doing nothing else will change the future so I'm not going to freak out or worry. I don't like waiting for scan results but at least they are availbl to me. Hugs! And heeling vibes to you!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | "OCF across the pond" Senior Member (100+ posts) Joined: Apr 2011 Posts: 131 | Hi I'm 7 weeks out and find with the obturator I seem to be really congested, I have like blocked ears and find it hard to hear, it's been like this for a few weeks now. Is this normal after cisplatin and rt? Doc checked my ears and said they look fine but I'm deaf as a post! I'm not so tired just bunged up just wondered if anyone else has this too Hope you are all doing ok I'm off to Paris for a few days and want to feel better so any tips would be really good Jayne xx
Scc nasal cavity /hard palate Surgery removal of septum and roof of mouth 15/3/11 cl margins Rt and cisplatin 6 weeks starting 24/5/11 Obturator
Age 45
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Apparently hearing can be affected by cisplatin... You might have a bit of congestion or swelling behind the ear drum, wait a week or so if it doesn't clear up go back! I woudnt be happy at all. But I think if you were going to have hearing loss due to cisplatin it would have happened during treatment so this may just be an infection of some type - though I am not certain... I'm sure someone here may have an answer for you. Good luck! Congrats on being seven weeks out! I'm 15!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Its pretty common for someone who has had treatments to have swelling afterwards. Also, radiation has affected my sinuses so its like I have a head cold every day. It isnt ever going to get better so I deal with it by taking cold meds. Its just one of the after effects from radiation. No complaints from me, Im thrilled to still be alive! Cheryl is correct, cisplatin can cause hearing loss, its normally the high pitched frequencies that gets messed up. Have a wonderful trip and check it when you get back. Try some nose spray and antihistimine for the sinuses. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Geez I didnt see the Paris part have an awesome trip!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | "OCF across the pond" Senior Member (100+ posts) Joined: Apr 2011 Posts: 131 | Thanks guys iv got some decongestant tablets will see if they help Sounds like I have the same head cold as you Christine , but you right it's a small price to pay ! Jayne x
Scc nasal cavity /hard palate Surgery removal of septum and roof of mouth 15/3/11 cl margins Rt and cisplatin 6 weeks starting 24/5/11 Obturator
Age 45
| | |
Forums23 Topics18,209 Posts197,040 Members13,223 | Most Online614 Jul 29th, 2024 | | | |