| Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Well, David - you're right, being a caretaker can be godawful hard, but since you've been on both sides of the experience, that makes you that much better as a caretaker. So kudos to you for all you do!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | LOL David, I likes my caregiver too. I had this old man and still do but he makes me do too much. A caretaker is the ideal way to fight this and I would bet Sandy is the perfect person for this job . I admire you sandy and the way you do your job.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | Hey Israel, sorry to hear about your story.
I'm also 21 years old. I was officially diagnosed just after my 21st birthday last year.
We're a bit of a rare breed at our age. But try to see that as a positive. Our youth can certainly have it's advantages fighting this disease. We must all be ready for the battle of our lives though. Being in a good place mentally helped me. I tried to embrace the battle and focus on getting through each day. Some days are much tougher than others. But having the determination to get through those tough days, gets you through to the better days. And you have to believe they will come.
Coming here for support is a great start. I wasn't aware of this site until after I finished treatment. I wish I'd discovered it earlier..
If you ever want to chat, I'm on the facebook list in the 'friends' section of this forum. You can msg me on there or on here. You're not alone in this fight.
All the best mate.
dave
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2011 Posts: 571 |  Uh ohhhhh! I owe a big apology to my wonderful friends here who are, or have been, caregivers! You know I love you!!! Being a caregiver/caretaker certainly is a horrendously difficult and demanding job. I am so sorry for making a statement that marginalizes what you do or have done. I'm so thankful for your guidance and camaraderie. So, Israel, if you have a caregiver, the OCF Forum is a great place for him or her, as well. It really is a family. @ Anne-Marie: You're an amazing caregiver and you give so much support to other caregivers...we're very blessed. (And thanks for not raking me over the coals!) @ Jim: Thank you  I'm just a pitbull about some stuff and a mama bear about others. If J and I end up going through it, then I really hope I rise to the challenge. @ David R.: Bless you for knowing both parts far too well and for still having a sense of humor! @ David CPA: Thank you for acknowledging how important caregivers are to patients. You are so kind to make sure it doesn't go unnoticed. Love to all! ...and especially for gentleman Jim...a big hug and kiss!
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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