| Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | Hey cheryld.I had 30 taken on the left,so 3/30 were cancerous.I had a needle biopsy on the lump on my right.it was found to be cancerous but I found it early.after treatment the lump had shrinked & I could still feel a smaller lump which was just leftover scar tissue.but it played on my mind until it completely dissapeared,which from memory took about a month (roughly) after my treatment finished.all the best. Dave
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | I'm glad you are doing so well! Thanks for the ion - mine is o small that a needle biopsy probably wouldn't work - I'm ok with he rads ank Chemo - hoping it will get a permanent kick in the pants!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Sep 2010 Posts: 34 "OCF Down Under" Contributing Member (25+ posts) | "OCF Down Under" Contributing Member (25+ posts) Joined: Sep 2010 Posts: 34 | Hey Dave i had my treatment at RBH went there from CQ i just got to say that now 2yrs on its a bit of a blur so much happened in such a short amount of time 7wks rad and the 3 chemo's.I just want to which you all the best for the future you have good support and a positive attitude your already in front.
2yr survivor throat cancer secondaries in neck pegin/pegout 7wks rad/3 chemo's last pet scan all clear | | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | hey malo5. good to see you're doing well 2 years since your treatment! so much does happen in that short amount of time but it seems to last a lifetime during treatment. thanks for the kind words. all the best cheers, dave
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: Apr 2011 Posts: 4 Member | Member Joined: Apr 2011 Posts: 4 | Hey my name is Brian and I have just stumbled across some info that I might have some type of throat cancer that was caused by an HPV strand if anyone has any info on symptoms they had who have had it. my symptoms are irregular swallow not really pain but my ear aches and now is ringing constantly any help greatly apprieciated | | | | Joined: Apr 2011 Posts: 4 Member | Member Joined: Apr 2011 Posts: 4 | First time on here so not sure how it works yet | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Check out HPV right here on this site. It will give you tons of info. Many of us on this site have/had a HPV+ tumor. Can't tell by your posts but you need to be checked out by a qualified OC doctor.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2010 Posts: 224 | hi there. So sorry to read of another fellow young person getting this, but i feel worse for you, as i had a few more years till i got mine. My heart just sank when you said they decided against peg because of the initial 6 weeks, and because you had already started treatment. Here...they usually suggest you get it, even with the 6 weeks. And I had mine placed the 4th week of my 6, and only had issues cuz the darn hospital staff gave me a sickness that caused me to have problems with it, but i know many, many many people that get theirs even after their treatment has started and they have never had any problems with it! So it just makes me sad that ur docs were saying that! The peg is so much better then that darn nasal tube,  I am glad you are doing so well now. The physical issues will more then likely go away with time. I still have some shoulder pains on the side of my neck dissection if i work a long day, but it's so much better then what it used to be! Keep up the great work! I feel we were at a big advantage to get it while we are still pretty young, we heal much faster then most of our fellow older people, and for me, i appreciate so much more now, and take less for granted! Also, I don't have ultrasounds, we mainly do PET/CT scans over here as follow up after treatment, and if anything suspiscous pops up, they will do a biopsy and sometimes use ultrasound to guide the biopsy, but usually just the PET/CTs! Keep up the great work.
25/female at diagnosis Dx;stage 3 SCC tongue 03/25/2010 Surgery 04/13/2010 Trach,ng tube, peg feeding tube Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue. 30 rounds IMRT ended July 15,2010 | | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | hey bethers  it's nice to hear from someone around my age, but at the same time it's terrible that you went through all this as well! looking back, it definitely would have been alot nicer to have the peg. It was pretty horrible having the nasal tube in for those weeks to say the least. but i guess the doctors have learnt from my case, and the next person who comes along will be given the peg. so some good may have come of it i hope! I do share you're attitude on it being almost a good thing to get this while we're young. i had a shocking time in recovery after my op with the jaw split making things worse. but i still managed to get out of there in 8 days. and i'm back at fulltime work outdoors & at the gym now since i've finished treatment. so things have healed up nice and quickly in comparison to some other's i'm sure. so we're certainly lucky there! i definitely take less for granted like you say and appreciate the little things in life. i don't even follow the date at the moment. i'm just really enjoying feeling good. so not much gets me down or angry at the moment. i'll also be getting a pet scan in may. and from then onwards, i assume it'll be 3 monthly scans if all goes well.. anyway it's nice to hear from you. and it looks like you're travelling very well also. congratulations  i hope things continue on that path! all the best. cheers! dave
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2010 Posts: 224 | I couldn't imagine having the nasal one for that long. I had it for 3 weeks, and my nose and throat just got so raw from it I almost pulled it out myself, lol. Do you have a facebook account? quite a few people from here are on there, and it's nice to place a face to the name to people you talk to on here. Plus there, you can post pics, 
25/female at diagnosis Dx;stage 3 SCC tongue 03/25/2010 Surgery 04/13/2010 Trach,ng tube, peg feeding tube Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue. 30 rounds IMRT ended July 15,2010 | | |
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