| | Joined: Jan 2011 Posts: 63 "OCF Down Under" Supporting Member (50+ posts) |  "OCF Down Under" Supporting Member (50+ posts)
Joined: Jan 2011 Posts: 63 | THank you everyone for you well wishes. I have finished round 1 of chemo..so far the swelling around my jaw and neck seems to have gone down..my oncologist seemed pleased anyway!! My hair is starting to fall and apart from heartburn I am coping well..even cleaned the house today and jumped on the rebound trampoline for a good 20 mins!! I am eating well...trying to gain kilos that I lost ready for round 2 starting on the 18th of April. I must have the record for recurrences...twice in a matter of weeks! God willing, the chemo will shrink the tumours enough for radiation to then do its job. My neck already looks like its been burnt!
Although my prognosis is not good, I am just happy to feel human again after the first round of chemo. It's great to be be back home with my family and loved ones...their support and prayers along with the many who are praying for me around the world lifts my spirits up. Each day is a gift and I am just happy to open my eyes every morning and see another new day! And I know many people who have been given just a limited amount of time to live, but have defied the odds to do so my faith and hope is still alive.
You guys have been wonderful..thank you for your prayers....I really apprecaite it. xx
SCC of the Buccal Mucosa (R cheek)- T1N0M0.10 hour Surgery on 27/9/10 involving resection with freeflap from radial forearm..clear margins. Neck dissection..negative nodes.Trachy, NGT, no rad or chemo needed at the time. Neck lump positive for SCC..again! MND 14/2/11. Waiting to have chemo and rads
| | | | | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Wow, welcome home Liza. You are amazing - cleaning and exercising! Talk about tough. Mentally and physically. Glad you are able to eat now and enjoy being with your family. No doubt you will be stronger for your next chemo treatments. Well done, with love from Helen
RHTonsil SCC Stage IV tx completed May 03
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Liza, thats wonderful that you are finally home. Please do not overdo it and wear yourself out. So glad to read that you are doing so well. I wish you all the best with this hurdle you must get over. (((HUGS)))) and prayers being sent your way!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | Glad to hear that you are home and eating. Eat as much as you can between chemo's. We managed to put onto steve what he would lose each chemo, between chemo's so it kept him going. You will get through this ok, your a tough Aussie woman. Prognosis isn't always right either remember. It's just a stat. Steve is a constant reminder of that. Going by the doctor's he shouldn't be here, but here he is Take care my lovely friend. Sending lots of love across the country.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Dec 2010 Posts: 291 | Liza,
Sounds to me like you are doing wonderfully at home. That's so great!
We are all on your side.
Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Liza,
Have been out of action these last couple of days or would have posted sooner.
I am so glad that you are home being active and trying to gain weight.
Above all it is great that you are back with family, friends and loved ones which has be the very best medicine.
Continue to enjoy the next 9 days before round 2.
Think about you all the time and wishing you continued strength to fight this dreadful desease.
Love and hugs
Gabriele xxx
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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