| | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Dusty, to put a signature below your message, just go to the top of this page where it says "My Stuff", click on "profile" and then scroll all the way down and you will see a space for you to fill in whatever information you like. In addition to the list available on this site, I also made a list taken from the OCF postings here:
http://web.utk.edu/~aalix/abbreviations.html
Hope you continue to do as well as you have. You will find lots of support and compassion from everyone here.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Dusty radiation is no walk in the park ( I'm mid week 3 - ) but it's doable - I am doing 33 rounds - and 3 chemos...
My cancer sounds the same as yours - I had a partial glossectomy, and left neck dissection with one node involved.
Good luck with radiation. It sucks but it is worth it... Do your neck exercises - do your mouth and swallowing exercises - get a good cream for your radiated areas - and invest in magic mouthwash - helps with the sores!!! And rinse and spit with a mixture of baking soda and water - frequently... It has healing properties ( this is during radiation). also I am sure Christine has or will be along with the numbers but eat what you can and as much as you can now!!! Drink plenty of fluids. Have fluoride trays made - they help save your teeth. You are doing two weeks less than me so you may not be too incapacitated - but everyone is affected differently. Finally see a physiotherapist. I started this week working on my neck and arm on the affected side - it makes a world of difference.
Good luck! And take care!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2011 Posts: 131 Likes: 5 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2011 Posts: 131 Likes: 5 | Dusty, Welcome. Yes I'm a Yankee but I lived right off the Kings Road from 1987-1989. Loved it. You're in the right place here and it sounds like you are a true survivor. Just click on "my stuff" and then "profile" in the dropdown box to make your profile and put in your info.
Will
Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
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