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Gary #132453 04-04-2011 08:12 AM
Joined: Jan 2011
Posts: 123
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Jan 2011
Posts: 123
My husband is 5 1/2 weeks post treatment and I feel like we are finally starting to turn the corner. He is still in a great deal of pain and on all of his pains meds (last weeks was the first week they didn't increase any of them!) but the muscus is much better and he isn't spitting as much. He is still only able to drink liquids and eat some yogurt but is trying to take all of his feedings of Two-Cal through his mouth and not the PEG tube. After about 2-3 weeks he starting going for walks and we have been able to run more errands together and I can have him watch our 11 month old for longer periods (while I am upstairs). He even went and played poker up in NH this weekend with a friend. The recover is SLOW but it does happen and each day you feel a little better. Ken has been fustrated with the progress but all of his Drs. have been happy with it. I cannot imagine being the patient with young kids - being the caregiver has been hard enough. I hope you start to turn the corner this week and can start enjoying time with you family again soon!


Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
kenswife #132456 04-04-2011 12:35 PM
Joined: Jan 2011
Posts: 168
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Jan 2011
Posts: 168
Sounds like your husband is taking lots of good small steps. And sounds like he has a wonderful caretaker in you. I send him and you all good thoughts. Mucus and mouth secretions are my biggest problem, toward early morning today I felt a wee small change for the better. We take what we can get, right? -Michelle


SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
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