| | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | results to follow on the 19th. they can't seem to do anything in under a week around here.
I've been told i'm too much of a control freak and to "let it be" so to speak(not by anyone here), so I'll try not caring for a week or two and see how it goes. (cuz we can just turn that off, right?)
C
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | good luck to both of you with the scans. I'll be thinking of you.
I know what you mean about caring. I got told yesterday that I'm a pain sometimes because I want to talk about cancer with Steve. Hello, discussing what the doctor just said and trying to make decisions is something we have to do. If steve had his way it would only ever be mentioned by doctor's and when we get home cancer would no longer exist in our life, only at the hospital. Nearly 2 years since diagnosis and I still don't know how he feels about the entire thing. It's like I have to go through every life changing aspect of this with him but not actually discuss how this is impacting on us in any way with him. Grrrrrr, men. Love him dearly but sometimes I'd just like to thump him.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
17/03/22 lost the battle. Missed dearly
| | | | | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | Its hard isn't it to oversee so much of their treatment, then just stop when they feel they are ready to "take over".
He said that I've done so much lately he feels like he can't even think for himself anymore.
It's not all the pain drugs or chemo... it's my interference... ooookkkayyyy buddy. | | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | How about "its not your cancer its mine"
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | Oh Liz... that statement is RIDICULOUS! He's said something of the like to me early on.
Tues night was chemo night from hell with bucket holding, temp taking, face washing, shivering cuddling...etc.
He now thinks I am amazing for seeing him through that night.
FYI honey doll... I've been amazing this whole time.
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
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