| | Joined: Mar 2011 Posts: 7 Member | OP  Member
Joined: Mar 2011 Posts: 7 | Hi every one, after I had the chat with you guys.. we went to see the doc charged with many questions.. but by then they had already decieded to operate on him .. they are calling it cleaning... and may be an hour procedure to remove that dead part. Btw the pain has also reduced . so we r happy .he is going to OR on 22nd of march. we are very optimistic.the docs hace explained many things ... yes Angelia they said they think he got necrosis due to radition but with surgery they will do biospy n find for sure why it happened.
They also reduce the hydromorphone . he is not that drowsy but still lost .. his short term memory loss is still here.
will this go away?I wonder....
taking care of my father in law who was diagnosed with stage 2 Squamous-cell carcinoma in march 2010. had surgery done in April , recurrence in sept2010, RT and cetaxomab done in oct n November. still on peg tube. he has tongue necrosis..... developed lymphoedema after radiation.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | It may be the drugs they can really mess with a person... It could also be related to age, but I would lean towards the drugs... Tell your GP - or specialist ask if there is something you can do. Best of luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2011 Posts: 7 Member | | OP Member
Joined: Mar 2011 Posts: 7 | Hello Every one, I was so busy with My father inlaw's case that didn't get any chance to update .
well after I had this chat with you all. we went back charged with lots of questions and information. His team of docs it seems that had done there home work alreay thank God.
they told us the necrosis of tongue can happen with radiation.and sice part of the dead tissue was kind of seperated and they wanted to do the surgery in emergency and take out the dead part and since it was a rare case for them they had a BIG team of doctors/ surgeons .
they were afraid of using GA so they opted for some thing similar to local (which apperntly worked for 3 hours)
when they opened him up ( his mouth) theuy found that the major part of the tongue was dead( necrosis of the tongue). they took almost the whole thing out . and had to do treacotomy( I hope I spelled that correct)as well.
he is now in observation unit. and we are waiting for the biopsy .
BTW they also changed his pain killers which were making him forget every thing.
we are waiting now... .
taking care of my father in law who was diagnosed with stage 2 Squamous-cell carcinoma in march 2010. had surgery done in April , recurrence in sept2010, RT and cetaxomab done in oct n November. still on peg tube. he has tongue necrosis..... developed lymphoedema after radiation.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | That's horrible... Hopefully they get things sorted out... God bless!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | I am afraid that, that is going to happen to me. As each day more and mroe of my tongue turns white, like there is not blood flow, but it is painful. makes no since to me. Anyway I have an appt April 4th and will ask the RO about it then. They may want be to do mroe HBO treatments. It is so frusterating, isn't it?
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Mar 2011 Posts: 7 Member | | OP Member
Joined: Mar 2011 Posts: 7 | I went to see Him today:) he looked good..he was wide awake and was very much aware of his surrounding... ever since they switched his pain killers he is back with his memory ( I felt like I was meeting him after so many days)but he did not give me the luxury to cry.... He gave me such a nice smile..... It took all my strength not to cry and keep on smiling and telling him about his grand kids.
he is still in observation unit.
we are taking one day at a time.
taking care of my father in law who was diagnosed with stage 2 Squamous-cell carcinoma in march 2010. had surgery done in April , recurrence in sept2010, RT and cetaxomab done in oct n November. still on peg tube. he has tongue necrosis..... developed lymphoedema after radiation.
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