| Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | @David2 cheers mate. gee california! i'm hopeing to go their on holidays in the next couple of years, if all goes well. Europe and the US are on my list. i'd just gotten home from my first overseas trip (south africa soccer/football world cup) when i was diagnosed. so i'd just gotten the bug for travel :)now, all i need is money haha ! i can't believe you drove yourself to all those treatments. i know i was absolutely no chance of achieving that. that's incredible. thankyou very much mate. i send the same best wishes back to you.i have noticed a few david's getting around!good to see  all the best, dave
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Hi Dave, It�s a welcome from another fellow Aussie. My first thought when I was reading some of these posts on my phone earlier this morning was ; 1. Not another David and 2.You have been through so much these last few months. I particularly liked your response in one of your posts; [quote=Dave1989]i only found this tonight by chance, and it's comforting to have that support group from those who have 'been there, done that'. i wouldn't wish any of it on my worst enemy. but like you say, it's very inspiring to see how strong some people are,especially yourself! hopefully i can build some bonds and frienships as well. [/quote] It is a good thing you found us as this is the best place for OC patients, carers, survivors etc and you will find many new friends here. When you get a chance just add a signature so people here can see that summary every time you post and this helps with replies. Got to MY STUFF, PROFILE, scroll right down to the bottom and add it where you see Signature: (up to 300 characters) You may use UBBCode in your signature. You can cut and paste mine or someone elses and edit it to fit your profile if you like. Love and best wishes and may you stay cancer free! Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | @ Gabe thanks mate, i'll try and get my signature suitably sorted today. i'm unsure of the correct medical terminology for some of it.. but at the very least i'll put up a more 'simplified' temporary version, and i'll find some of the doctor forms with the correct terms on there. it's pretty unusual to have so many david's. i didn't think that would be what i had in common with so many people here  is their many other's in my age bracket under similar circumstances on this site? of course, i hope their isn't.. but i've been told so often that i'm a rare case for my age. but in saying that, i know thier must be alot of other's out there also. thanks again, and all the best to you as well. cheers, dave edit- i just added a signature. hopefully it's reasonably clear for those reading. cheers !
Last edited by Dave1989; 02-28-2011 06:43 PM.
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | A few years ago we had a young girl from the UK who was just 18. Ive met a guy who was only 17 when he was diagnosed. So now there are 3 people Ive seen get this before they turned 21. Oral cancer is not one of the big 3 cancers and unfortunately it isnt known about that much. Im sure there are other young people who have had this but it is pretty rare. Being so young, you can recover and move on to have a good long life!!! The person I met who was only 17 when he got cancer is currently a 16 year survivor.
You will go on to do great things with your long life! Best wishes for continued good health. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Signature looks good Dave. Just checking as I remembered there was another David from Brisbane. Search David P in top right search bar..go He only posted 4 times (which you can read) but I am sure it would be OK if you wanted to send him a message. Subject was hello to all in Introduce Yourself http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=124038&page=1
Last edited by Gabe; 02-28-2011 07:30 PM. Reason: link added as search brings up all Davids
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: Dec 2003 Posts: 528 | Hi Dave
I am so sorry that you have been through so much and at such a young age. But it is very positive that your latest ultrasound is clear. Have the PET scan if your doc recommends it.
It is good that you found this site. You will receive support here as you recover. Ask many questions, others will have been there. Have you browsed the main section of this site - it is full of useful info.
My cancer was very different to yours, tongue not involved, but I had extensive spread to the lymph system. Soon I will celebrate 7 years cancer-free since the end of treatment. I certainly wish you well for your complete recovery.
Best wishes from Helen
RHTonsil SCC Stage IV tx completed May 03
| | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | @Christine, thanks mate. thanks for letting me know about the other young people diagnosed. it's good to hear that there's a real possibility of success as well. i can only hope the worst is over for me, and like you say i can move on and live a happy life cheers.
@ Gabe, thanks. i'll take a look at his profile. what are the odds of their being so many david's..?unbelieveable.cheers mate
@AussieH, thanks mate, and i haven't had much time to search through much of the site. i will over the next week though. i'm sure there's a wealth of knowledge on here and inspiring stories to help me further.sorry to hear of your cancer, but congratulations on the 7 years of freedom since. that's great news. well done!
thanks again everybody, cheers. dave
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I have been saying this for years and people just don't listen to me when I tell them that the name "David" is a cause of OC! We are cursed from inception! lol
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | Dave - i am sorry you have to be here but it sounds like you are doing fantastic - no one your age should ever have to go through this ( no one should actually) but particularly someone so young it's scary - as a parent i would much rather have to face this than have my child deal with it. Your mom sounds amazing, and I am glad you are doing so well. It's inspiring - please keep us updated on how you are doing. Many hugs and best wishes to you.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | OP "OCF Down Under" Supporting Member (50+ posts) Joined: Feb 2011 Posts: 82 | @ david cpa, the statistics would be hard to argue with haha  @Cheryld, you're right, it's not fair to anyone, of any age group to go through something like this. I think my mum shares your sentiments when it comes to parenting. she's said many times that she'd do anything to take my place. not that i'd let her! i have similar sentiments. i was glad it was me and not one of my 2 older brother's! thankyou very much for the msg. cheers !, dave
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | |
Forums23 Topics18,235 Posts197,106 Members13,294 | Most Online1,788 Jan 23rd, 2025 | | | |