| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sug, Ive been following your posts. I admire your bravery and tenacity. Going thru this more than once is horrible, but your saga takes the cake!!! You are very very fortunate that the latest bout has been caught so early!
Ive had the operation you described but it was on a much larger scale, my whole bottom jaw was removed. What you will go thru isnt a walk in the park, it will take you a while to bounce back from this. The part that makes me say you are so lucky is that the doc only has to remove a few teeth and shave some off the jawbone. Its still invasive but not as extreme as the procedure I am used to reading about on here.
Im looking forward to hearing your story of a successful operation! Then no more!!!!! Let the cancer finally be gone forever!!!! You have had more than your share of this awful disease. I wish you all the best! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Hi Sue, Wishing you all the very best of luck with your surgery on Monday. It sound exactly like the one I had (4 teeth removed for me) and definitely not as extensive as Christine�s. It is fantastic that you have a great team that you have faith in. I went in to my operation with very little understanding of what was going to happen. Maybe that was not a bad thing either..hard to say now! My operation was in early September, first social occasion end of October, back at work November all be it reduced hours. You should be fine for your trip in May so keep thinking of that if you get a little down those first days in hospital. PM me your number if you want me to call and have a chat over the weekend. Love Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | OP "OCF Down Under" Senior Member (100+ posts) Joined: May 2007 Posts: 132 | Thanks Christine and Gabe,
I had to meet with the Anaesthetist this morning and he was also quite encouraging and positive about the surgery. I now just want to get it over and put this behind me. I so hope that this will be the last time I have to face such serious surgery and that this damned cancer will cut me a break for a while.
As an aside I was told that I may well temporarily have a NG tube, despite having a PEG already, because they use that to drain out mucous. Not sure how that works but I guess I'll find out. I'll still be having all my feeds through the PEG.
I also get an extra night at home. I now don't have to be at the hospital till 7am Monday. Yey! I'm heading off shortly with two girlfriends for a day and a half of pampering at a Day Spa and resort and will then be spending Sunday with family and friends before the big day. I won't have too much time for stressing thankfully. At the moment I'm content and in a good place.
Thanks to you and everyone else at OCF for your ongoing support. You probably know how much it helps communicating with others who have been where you're going and really understand the frustrations and trials that we face. Sometimes, even when I'm not posting, I find reassurance in reading that others have overcome worse than me and are still living meaningful and fulfilling lives.
With Love and Thanks
Sue G
55 y/o SCC LL Tongue 3/27/07 Part. mandibulectomy 9/2/07 Left ND 5/12/08 RT/Chemo Rec LL Tongue 07/09 Part gloss 8/5 & 8/25 Surg 10/28/09 re mets to R neck & L jaw RT & Chemo finished 12/22/09 PEG fitted 05/06/10 L buccal SCC 10/10 freeflap (forearm)surgery 2/28/11 L buccal and gingiva
| | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | Sue
Best wishes for a successful surgery on Monday. I hope everything goes well, and recovery is quick.
Take care
Karen
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | You have been through this too many times. You courage and positive atitude encourages me. Will be praying for you.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Apr 2009 Posts: 104 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Apr 2009 Posts: 104 | Sue, just sending warm wishes your way for your upcoming treatment and recovery.
GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
| | | | Joined: Jan 2011 Posts: 63 "OCF Down Under" Supporting Member (50+ posts) | "OCF Down Under" Supporting Member (50+ posts) Joined: Jan 2011 Posts: 63 | Sue, I wish you all the luck and success with your surgery on Monday. I did ring you on Saturday but I guess you were off at the spa resort getting pampered!! I pray that you recover and heal quickly...and as Christine said ' no more cancer'!! Take care and I will keep on checking for updates from you. Be strong and keep the faith.
Love, hugs and prayers
Liza xx
SCC of the Buccal Mucosa (R cheek)- T1N0M0.10 hour Surgery on 27/9/10 involving resection with freeflap from radial forearm..clear margins. Neck dissection..negative nodes.Trachy, NGT, no rad or chemo needed at the time. Neck lump positive for SCC..again! MND 14/2/11. Waiting to have chemo and rads
| | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | OP "OCF Down Under" Senior Member (100+ posts) Joined: May 2007 Posts: 132 | Thanks for the good wishes from everyone. Family and friends, along with those here at OCF, have been providing me with great support and encouragement and I'm not going to let this ruin even one minute of my time before surgery. I may have a day or two of feeling a bit sorry for myself when I wake up post surgery, but I'm sure I won't be allowed to laugh anyway! I got your message Liza but I was out with friends so I couldn't return your call. Thanks again everyone.
Sue
55 y/o SCC LL Tongue 3/27/07 Part. mandibulectomy 9/2/07 Left ND 5/12/08 RT/Chemo Rec LL Tongue 07/09 Part gloss 8/5 & 8/25 Surg 10/28/09 re mets to R neck & L jaw RT & Chemo finished 12/22/09 PEG fitted 05/06/10 L buccal SCC 10/10 freeflap (forearm)surgery 2/28/11 L buccal and gingiva
| | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | OP "OCF Down Under" Senior Member (100+ posts) Joined: May 2007 Posts: 132 | I'm back at home after my freeflap surgery. Spent 4 days in ICU, with no trachy, being ventilated via my nose. Didn't enjoy the ventilator or having it removed! But it did the job and no trachy was required. Was moved to the Plastic Surgery ward on Thursday last week and gradually started taking on human form from then on. My flap is healthy and my arm looks grotesque but they say it is healing well. I won't see my thigh until Wednesday.
It is so good to be back at home in my own bed! I hope that this was my last hospital visit for a while. Everytime that I think I have this thing beat some new twist in the tale appears.
Found out that I have an OCF member living literally around the corner (Hi Jenna!) how small a world is this?
55 y/o SCC LL Tongue 3/27/07 Part. mandibulectomy 9/2/07 Left ND 5/12/08 RT/Chemo Rec LL Tongue 07/09 Part gloss 8/5 & 8/25 Surg 10/28/09 re mets to R neck & L jaw RT & Chemo finished 12/22/09 PEG fitted 05/06/10 L buccal SCC 10/10 freeflap (forearm)surgery 2/28/11 L buccal and gingiva
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Glad you are back home. Pray you have no more problems in 2011 or ever.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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