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| | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Sue, wishing you a speedy recovery. Small world isnt it! So glad you have a OCF friend nearby! Hope this is the last time you have to go thru any procedures.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Sue, It is great that you are home now for the final recovery stage. Sounds like you are progressing really well and I hope you really do have it beat this time. When I mentioned a Sue in Victoria to Jeanna I did not envisage that you lived just around the corner. As you say it�s a small world. While I work for the same company as one of our OCF caregivers (klo) we usually only manage a cup of coffee now and again. It was nice to have lunch with her yesterday and you can guess the main topic of conversion  I really do not want to see you post round 8, op 15 � OK!! Love Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | | "OCF Down Under" Senior Member (100+ posts)
Joined: May 2007 Posts: 132 | Thanks Gabe and Christine,
I hope that I won't have to have any more Operations either. I have had enough! I still haven't met Jeanna as I'm housebound and her husband has been ill, but hopefully we'll get together soon. Thank you for mentioning me to her as I doubt we would have ever known we were so close otherwise. I still can't believe that we live so close together. It would take me no more than 5 minutes to walk to her house and that would be walking slowly!
I go to a Plastic Surgery clinic tomorrow to have my graft and various wounds checked, and then to see the ENT and Speech Therapist on Thursday. I think I'm doing really well and hopefully they will confirm it. We have a trip planned for mid May so hopefully I will be talking and well healed by then. I'm almost compulsive now about having something to look forward to and to aim for.
Thanks for your ongoing support.
Sue G
55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
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