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Joined: Nov 2010
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Joined: Nov 2010
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Despite having a feeding tube installed and using it regularly, my husband lost almost 30 pounds during treatment and one month after. He, too, lives on ensure, to this day! He has some kind of sores in his mouth that make eating solid food painful! So.. Yes, watch the weight! The better supplements you can take, the better you will feel throughout the treatment.

Tom also had some minor burning on the neck. We used Aquaphor twice a day and a specialty lotion we found at Sunflowers with no alcohol and aloe/shea additives. I also rubbed lotion on his face as it tended to be dry and peeling also. Toward the end, we started using Silverdene, as well. That stuff was a God-send!! It cleared up the burns in less than a week!

Best of luck to you!!


Wife of Tom, 42
SCC/Tonsil DX 9/23/2010
PEG/Port 11/2010
TX Begins 11/16/2010
Chemo ended 12/28/2010
Radiation ended 1/6/2011
Neutropenia 1/7/2011
Osteoradionecrosis 09/2011
Jaw Resection/Flap 01/2012
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Joined: Jun 2007
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Mrs V---Ask the doc for a magic mouthwash prescription. Its made several different ways, mine was lidocain, malox and benedryl. Your husband would swish it around in his mouth for about 15 c=seconds then spit it out. It should numb his mouth long enough for him to eat. Also he should be rinsing several times per day with 16 oz warm water, 2 tsp baking soda and 2 tsp salt. If it burns then decrease or omit the salt. But the salt in it really helps! This mouth rinse will help heal the mouth sores.

Sorry Nona to go off topic. This info can help you too as you go thru treatments.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 3,082
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NonaChris

IMO, The best way to take care of your neck during radiation is NOT to have concurrent Erbitux chemotherapy. And you are doing that. (aside: this is not some personal foible, there are serious questions about Erbitux not working on 33% or more of patients and just increasing the radiation dermatitis- Dr. Gillison is checking this out as well as my CCC - although I know it to be true for me)
My RO swore by Burt's Bee Balm for his patients. My wife cannot stand the smell of it now as it reminds her of our worst times.
Whatever you use, monitor your skin. there is also a prescription gel I used: Saf Gel, a "hydrating deremal wound dressing with aglinate" although I see from Dr. Google that is now availble on Amazon (use the OCF link) and Walmart without a prescription. It was quite good and soothing.
Best wishes
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Aug 2009
Posts: 207
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Can you get Solugel in the States? You need to keep the burns on your neck moist, covered & and clean.....do your Cancer hospitals or centres not supply you with assistance & mouth washes?


Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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