| | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) |  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | Are you sure that they said he has lymphoma? That is an entirely different kind of cancer, and what would seem most likely is that he has a metastasis of his OSSC to the lymph nodes of the neck, not lymphoma.
If he indeed does have lymphoma, the treatment plans for two different but synchronous cancers really have to be carefully considered (only at a ccc) as they are going to need to use different chemotheraputic agents, perhaps not simultaneously. Two distinctly different primaries in an early stage cancer patient is very uncommon.
I think he needs to go tho the docs in Seattle. That treatment plan sounds appropriate and has less morbidity associated with it.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Dec 2010 Posts: 99 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Dec 2010 Posts: 99 | I would suggest a 2nd opinion at UofM before Beaumont Hosp. They are top for heart TX but we have a friend being treated there for cancer now, they are relying on confiring with CCC Drs. - I would go directly to their source instead. I just read that UofM is using a new method for tongue surgery with less restrictive results. My husband had mets to one node involved with his first tongue surgery and our Dr. in GRapids recommended no Chemo, rads., we were very happy - then the cancer came back in 1 year -now it was a much bigger problem and surgery. Be sure he understands what the total picture is of his situation, not just going with someone who says what you want to hear. And I would recommend going to one place for everything. It gets confusing with different Drs. for the same diagnosis. We chose a CCC 10 hours away so it has meant a lot of time traveling but we are confident in our treatment plan now and the Drs. are all on the same page with us.
CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear. 12/11 peg out. 2/15 still all clear! 9/14 Prostate cancer treated with pencil beam proton therapy, best radiation experience. Keep it in mind as a treatment option for all tumors that can be seen including head and neck.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Operating on radiated skin is hard. Though what David said is likely true - having the surgery would probably be negated if they are going to radiate him. Unless they are going to operate to get the nodes - and the primary site - both - going with the surgery first will just slow the process down. Which is fine if they are using surgery to remove all the cancer - but if they are just talking about taking out the nodes and leaving the rest that would tack on probably a month to 6 weeks before they can start radiation and chemo - I personally would go with the first option. Radiation and chemo and blast it all. Because he would have to have time to heal between surgery and rads! Good luck,
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2011 Posts: 8 Member | | OP Member
Joined: Jan 2011 Posts: 8 | Well he has decided to go to Seattle and start the Treatment program. He leaves on the 16th. Thank you for the input. He is going to have Karmanos do his follow up care here in Detroit after surgery.
SIL and Brother of Jeff
04/11 Adenoid Cystic Carcinoma
4/11L Tonsilectomy malignant
5/11 Lymphoma
Neutron Therapy ended 6/9/2011
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