| |
| | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Hi Nate. When John was scheduled to have his PEG removed all I heard was what an easy 10 minute procedure it was. Well we also fall into the "why can't it go as planned" group. John went in to have his PEG removed and they couldn't get the balloon to deflate so they had to use an Ultrasound guided needle through his stomach to deflate it, it took them almost a half hour. It was "uncomfortable" while they did the procedure but afterwards he had no pain. Good luck!
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Oh boy! Always something with you, huh? By now Im sure your procedure is over. Gosh I wish I had seen this earlier. I would have told you take pain meds before you go. Too late now. Hope all went well and you are alright. I will be watching for your post about what the heck happened and what they had to do to remove the peg. I know it does hurt like heck getting it removed. The pain lasts for at most 2 minutes then...WOW!!!! You will feel like a new man when that thing is gone.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | glad they are taking it out and doc sees you are doing well enough to do so, so sorry it isn't going as smoothly as you would like but like me, nothing that happens is ever easy with anything! so Murphy's Law my dear. keep chin up and head held high you are on your way back out of that tunnel! please keep in touch! taking that thing out can't be any worse than what you have been thru think of it that way.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
| |
