| Joined: Dec 2010 Posts: 8 Member | OP Member Joined: Dec 2010 Posts: 8 | Thanks for your imput:) I am just torn. I know ppl have been made cancer free through radically changing their lifestyle, especially what they eat. That is a fact. But, I am sure I will get surgery anyway! Going to Duke, then Johns Hopkins, then Mayo in Rochester! All in 4 days! I want to go see a Dr.Mark Urken in NY I hear he is the best but he isn't in-network with my insurane. Has anyone heard anything about Eric Moore at the Mayo Clinic? Oh, and I'm so glad you rescued a dog:) I volunteer at the greatdanerescue.org in NC! Oh,and just for the record I have totally changed my eating. Hopefull it will help me heal faster! | | | | Joined: Dec 2010 Posts: 8 Member | OP Member Joined: Dec 2010 Posts: 8 | Thanks for the welcome! But traditional medicine is not the only way! Does anyone realize what kind of garbage we put in our body everday? Cancer is on the rise not the other way around! I just don't know why ppl aren't trying to figure out why our bodies are reacting this way! If western medicine is so great than things would be getting better and there would be less cancer. But, doctors are just treating the problems. And where is all this money going that is raised for cancer? I feel like I seem to be the only one with my head out of the sand and everyone else is to scared to look around! Scared by doctors and scared by ppl who don't understand when someone doesn't want to be like the rest of sheep! If we want less cancer we need more leaders and less followers. | | | | Joined: Dec 2010 Posts: 8 Member | OP Member Joined: Dec 2010 Posts: 8 | They are interesting that is for sure! I feel like I'm in one of those walking dead movies, where I have to pretend I'm "just like everyone else" or else I'm Lunch! But, this has been my life story, so why would this be any diferent? It's ok I know everyone here has been through alot to say the least, and today is only my 2week "holy crap I have cancer" anniversary:) I just want God to use me and this cancer to help someone, anyone and that may mean going against the flow a little:) Sincerley, Always the black sheep, Jennifer | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Jennifer,
Going against the flow with holistic medicine when facing oral cancer will not help someone, it will just lead you to an early grave. 20 years ago my probability of living a normal life after treatment (which I now am) would have been an outside possibility. The advances in today�s technology mean I will now be able to see my son grow to be a man. Don�t be a martyr on the altar of holistic crap!
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 67 | I think you get the gist of what the people on the forum think. There is little question that you are laboring under a lot of misconceptions about any success that holistic medicine has had against cancer. It doesn't work, plain and simple. I know you can find lots of things on the web that say otherwise, but the web is the wild west...anyone can say or claim anything. IF YOU BELIEVE THIS UNSUBSTANTIATED CRAP, you in good faith follow their plans, and you will likely see your cancer continue to a more advanced and harder to treat state. Eventually it will become untreatable when you finally give into the reality. THEN IT WILL BE TOO LATE TO CHANGE YOUR MIND.
This is not a game. Do you not think if the holistic approaches that allowed people to avoid systemic chemo poisons, radiation and more, would be used by everyone if they worked? None of us want to go through what we did to beat cancer, but we're still here to talk about it and help others having done so. You can choose to listen to the people that are still around here on these boards and doctors at major cancer centers, or you can choose to believe what you are reading, that is not peer reviewed, or published in a major journal with critical review. It's up to you. No one here wants to see you make a mistake, but the debate you are drawing people into because of your lack of information is a waste of time. This has all been debated by way smarter people than you or us.... and holistic medicine didn't win the discussion.
But this forum isn't about debate. It's about helping people get through tough times. We have had several posters that chose things other than conventional therapy with a proven track record before. Some chose religion, some chose herbs, some chose diet. Please notice that none of them are here today to post to you that they had success. I suggest that rather than get into a debate with everyone about something that you do not have a lot of knowledge about yet, you wait to post further about your beliefs until you have been through your evaluations with some certified clinical oncology professionals. When you want or need our help to sort though the issue that will inevitably come up, the generous and caring people of this forum will help you. But this debating whether a holistic or conventional path is the right path discussion is a waste of everyones time. We have now tried to talk you out of going away from what has proven to work. I think that the posters here should not get embroiled in a debate over something that evidence based research has established the facts of. By the by, God is not using you to show people a better path or chosen you to enlighten the rest of the world..... If a God is allowing your free will to take you to a path that will end in your demise, it is more likely that He is setting a negative example. Something it would appear he does frequently given all the suffering in the world. Free will is a dangerous thing when combined with a lack of information.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Jennifer,
My wife and I have 2 85 lb rescue dogs. Let us hear what your cancer docs say.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Jennifer
Interestingly enough the Washington Post just ran an article about the Chinese Authorities closing down a uberpopular health talk show host for publishing a best selling book "How to cure the Diseases caused by Eating by Eating the right foods"- sounds like you were able to get a translation.
It's not a "fact" that people have cured their cancers by "eating right". Or rather it's an "internet fact" like the fictions that Eskimos have lots more ways to describe snow than we do (false). But as Brian said, we're not here to debate you.
And as far as being a Leader, you are on a very similar path followed by many many others. No doubt you will get conventional medical treatment from one of the excellent Cancer centers you are going to go to. That will "cure" your cancer but then you will blithely ascribe your cure to whatever diet of the day you've been sold. I've seen that happen here on OCF before.
Oh, and the radiation, chemo and surgery didn't really cure me either, it was drinking a bottle of beer each night. You can check it out on the Internet. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Jennifer, Let me first say I am not a health nut per say however - I am a vegetarian - I eat no fish, meat or dairy. I do have the occasional egg. (I don't eat dairy because I have an allergy to it) I don't drink alcohol, or smoke, and don't do drugs. I try to eat organic as much as possible, and any eggs I eat are organic from grain fed free run chickens. Plus I go to the gym at least 5 times a week - walk with my dog once a day and play ball with him every morning. No one in my house smokes and I work in a smoke free environment - and I still got cancer. I do believe that a healthy lifestyle will help you with your recovery I do believe that some Chinese medicines have value however when it comes to cancer despite the trauma of the treatment - it's best to seek out the best in their field and do what they say. So go ahead change your diet and lifestyle, I have no doubt it will help immensely in how you feel, but stick with the tried and true on the medical front - and if you do try to do some alternative therapies in tandem with your regular treatment make sure your dr.s are well aware of it. I am 10 days post dx - and yes my pooch is a rescue dog! Best of luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Btw, forgive me I didn't mean Chinese medicines specifically - though much of the holistic treatments do find a basis in Chinese medicines. I meant alternative medicine. Have a good one!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Dec 2010 Posts: 8 Member | OP Member Joined: Dec 2010 Posts: 8 | Brian, God is good all the time! And He will use this for His good! Because He is the good, to say the least! He has a plan for my life and yours Jeremiah 29:11. I am actually excited about what He has already done through this and thankful! I am not trying to be rude but when you say "we" maybe you should just say "I". I don't believe everyone on here feels the same way as you. This isn't high school so don't be the bully! The hard fact is that I have cancer and I will probably have the surgery like I said before. But!!! I have radically changed my lifestyle and will continue to do so!And I am excited about it! So if you don't want to be part of this post then simply don't. Sorry your angry, and if you need support or anyone else I am here. Jennifer | | |
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