| | Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jun 2009 Posts: 138 | Boy, my radiation treatment is not going smoothly to say the least. First, I had to have my PEG pulled out because it became dislodged and was out of my stomach. Now I will have to have some other feeding tube put in surgically.
But the last two days I have had blurry vision for about an hour following radiation. My doctors were puzzled and sent me for a CT scan of my brain which turned out fine. Has anyone else ever experienced blurry vision after radiation. The first day I thought maybe my mask was too tight, but the next day they made sure it was comfortable and it happened again.
BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | I think we are two peas in a pod. I was just noticing blurry vision when I was watching TV today. I will mention it to my Drs when I see them next. Maybe it is one of those side-effects that not very many people get like my throat and uvula swelling.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 |
Barbara
It might be from the chemotherapy cisplatin - one of the side effects of that can be blurred vision.
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | Cisplatin caused blurred vision for me also. Good luck both of you - my heart goes out to you. This is tough time right now but it will get better. I know those seem like shallow words when u are hurting like u are now, but there is an end to this treatment and u will feel better a few weeks after that. Just keep plowing forward.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I had blurry vision for about a year and a half and now it seems to be back to almost normal. As for the sore throat, I forget what it's like to not have a pain there 24 hrs a day or what a normal mouth would be like. Heck tho, I am alive and still running my mouth to make people smile and know life goes on no matter what. I could be much worse than I am.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2009 Posts: 33 | I've experienced blurry vision too, but seem to link to to the Compazine (Prochlorperazine) I was taking to prevent chemo nausea. It could also be from the Cisplatin itself, but yes, there are others of us out there with blurry vision going through radiation/chemo.
9.29.08: Dx @ 24 w/ T2 SCC, tongue
10.14.08: Partial gloss. & r. neck dissection. Margins/nodes all clear. No HPV. No rad.
10.06.09: Recurrence in l. lymphnode
11.16.09: L. neck dissection + lost nerve XII
12.28.09: 33xIMRT w/ concurrent 3xCisplatin (no PEG)
02.15.10: Done with treatment!
| | | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | I am about 15 weeks out and have noticed blurry vission recently. I might have beed too dazed before. I am going to see the ENT later this momth and will ask him about it. I do wear my reading glases more often now
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: Jun 2010 Posts: 153 "OCF Canuck, across the pond" Senior Member (100+ posts) | | "OCF Canuck, across the pond" Senior Member (100+ posts)
Joined: Jun 2010 Posts: 153 | I'm about 7.5 months out from my radiation/Cisplatin and have noticed that my distance vision hasn't been what it was, for a while now. I have trouble making out the gate assignment information at the airport, for example. I was thinking I was just getting older, but this thread makes me wonder if this could be yet another side-effect of my treatment.
I had Lasic eye surgery about seven years ago which was successful at the time. I would be glad if this turned out to be a temporary side effect of treatment.
-Seth
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL David. My blurry eyes have returned and I think it's time for new glasses. Might just be time for new ones.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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