Another mucoepidermoid survior here. My detail info is in my signature. I agree with feeling very much alone even here since "we" are few and far between. I have to reschedule my test for my 1 year mark as I have a trip I am going to take. Last year I was having radiation instead of enjoying a free vacation in a 5 Star in Vegas. But I still have my daily PET scans from Largo and so far so good.

The one thing I learned was that THEY make statements that we take to heart like, I KNOW I was very lucky, I would never regain any feeling in the area of the surgery. I am just a year past the major surgery and at this moment the entire area feels normal. I do seem to have a progression on the dry mouth not sure why that would happen but small price.

One question of the group. I am using the gel but if I use it every night I have two molars one on the right and one on the left that get to hurting so that I can't eat soft bread. I have gone to limiting the time I use the tray and skipping a night about once a week. Otherwise I am in too much pain to eat. I had
excellent teeth going into this and I tend to heal very fast and better than expected. I contacted the Dental Oncologist but she
didn't have an answer. Any thoughts as to what might be happening?

I'm in Ambler, so not too far. One of my closest friends is in Newtown. She's stage 4 Breast cancer (but that's a whole other story).