| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I eat what is liquid or can be made soupy and smooth. Even mashed tatters feel like sand. Swis Magic MouthWash and get it down quick. Then coffee or water to make sure it goes on it's journey south.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2010 Posts: 29 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Nov 2010 Posts: 29 | Thanks, guys for all the perspective! I'll try to stay optimistic. :^)
Rahel
Leukoplakia 3/07, 34y.o. non-smoker/drinker
Biopsy 3/08: clear (no monitoring suggested - grr)
Biopsy 10/18/10: SCC, Stage 2 1.
Surgery 11/15/10: glossectomy R side oral tongue & partial neck dissection. Margins, nodes & salivary gland clear!
Subsequent MRIs/CTs/PETs: All clear!
| | | | | Joined: Apr 2010 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2010 Posts: 27 | I had a skin graft to rebuild the excised tumor (back bottom left side of tongue that recurred after radiation and surgery) and so I have part of my forearm as the graft. While I have no taste buds this all occurred in August and I am getting some pretty good sensation out of the graft site now, enough to where I have a wide variety of things I can eat, so I know my situation is different but hopefully you regain that feeling soon. Best wishes,
Lisa
Lisa from Montana
40 years old
squamous cell-left lateral tongue & lymph with free flap skin graft and re-section,
PEG tube,
Total Glossectomy without Laryngotomy April 2011
Still mouthy as hell
plenty of war wounds
craving a cheeseburger
***10/14/11 UPDATE--Lisa has passed away
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Rahel, I'll trade you this tongue with all of it's pain for your numb one and give you some boot too. LOL That might encourage me to try other things that hurt like crazy.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 177 | Hey all, My tongue is either numb and tingling or burning and stiff. Either way I always know it is there. (or was). I hope after 5 years it might be better. I am just past 1 year. Isn't it strange how none of us are exactly alike, our time tables or physical sensations, our healing or treatments. We are all unique! I guess that is why we all help each other so much and for that I am truly grateful.
Wendy
Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
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